by: Parent Project Muscular Dystrophy
Family Friday: When You’re a Carrier
Learning that you are a female carrier of Duchenne can be shocking, overwhelming, and confusing. During our June 26, 2020 Family Friday on Facebook Live, we were joined by a panel of female carriers. We discussed the importance of caring for yourself both physically and mentally, including the theme of resilience and what it means for caregivers of children and adults living with Duchenne.
Watch the Recording
RESOURCES MENTIONED
PPMD’s VIRTUAL CONFERENCE
Don’t forget to join PPMD’s Virtual Annual Conference, July 22nd – 25th, where we’ll be featuring a panel on Caring for Female Carriers of Duchenne.
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Decode Duchenne
PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling, including carrier testing, to people in the Duchenne and Becker muscular dystrophy community. Participants must be living in the United States or Canada.
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The Duchenne Registry
Join The Duchenne Registry so we can better understand carriers of Duchenne and Becker.
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