November 4, 2021

Genetic Counselor Awareness Day: Celebrating PPMD’s Certified Genetic Counselors

Today, on Genetic Counselor Awareness Day, we celebrate PPMD’s Certified Genetic Counselors, Ann Martin and Niki Armstrong – two incredibly supportive and essential assets to the Duchenne community. Ann and Niki are invaluable members of…

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October 27, 2021

Calling All Individuals with Becker Muscular Dystrophy – We Need You!

Do you or a loved one have a diagnosis of Becker muscular dystrophy? If so, please read these important updates which are focused on how we can help individuals with Becker and their families. Becker…

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October 14, 2021

The Duchenne Registry has a new survey – Therapy Services!

We know that therapy services such as physical, occupational, and speech therapy are helpful to people with Duchenne and Becker throughout their lives.   The new Therapy Services survey was developed to better understand who is…

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December 10, 2020

The Duchenne Registry Celebrates One Year of Data Collection in our Smartphone App!

This year has been one for the record books for many reasons, but here at PPMD we are excited to celebrate one year of data collection in The Duchenne Registry’s new smartphone app platform! Our…

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July 14, 2020

Win a NEW Smartphone!

Win a NEW Smartphone! During PPMD’s Virtual Annual Conference in July, The Duchenne Registry will be giving away a brand new smartphone (iPhone or Android) to one lucky registrant! All you have to do is…

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April 7, 2020

Introducing PPMD’s Genetic Counselor Office Hours!

Introducing PPMD’s Genetic Counselor Office Hours! We are making it easier than ever before to connect with the genetic counselors at PPMD’s Duchenne Registry. The genetic counselors at The Duchenne Registry are board-certified and have…

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April 1, 2020

Duchenne Research Needs You: Your Self-Quarantine Checklist

Your Self-Quarantine Checklist: 1. Clean the house 2. Organize the closets 3. Join The Duchenne Registry!   Downloading the Registry’s new smartphone app is much easier and more fun than cleaning house or organizing closets!…

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November 12, 2019

The Duchenne Registry App is Available Now!

After twelve years of collecting data to advance research for Duchenne, PPMD’s Duchenne Registry is excited to share the new and improved Duchenne Registry Mobile App with our community of patients and caregivers! We believe the app will make…

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