February 17, 2021

New Resource! Safe & Unsafe Medications in Duchenne

Many years ago, PPMD developed a one-page resource of safe and unsafe medications in Duchenne. While many of those medications are now discussed in various related sections of our website, we recognize the need for…

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January 26, 2021

COVID-19 Vaccination & Duchenne | Priority Access – Sample Letter

As states continue to move through their Phase 1 COVID-19 vaccination distribution protocols, PPMD wants to make sure you are equipped with resources to advocate for priority access. For this reason, we have developed a…

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January 15, 2021

COVID-19 Vaccination & Duchenne: How mRNA Vaccines Work

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Here, with the help of Drs. Tim Cripe and Tim Franson,…

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January 15, 2021

COVID-19 Vaccination & Duchenne: How mRNA Vaccines Work

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Here, with the help of Drs. Tim Cripe and Tim Franson,…

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December 12, 2020

WATCH: COVID-19 Vaccination & Duchenne: What You Need To Know (Webinar Recording)

We all have spent the last several months doing our best to keep ourselves and our families safe, while adjusting to this new virtual world. PPMD recognizes this has been nothing short of challenging, and…

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November 21, 2020

NEW – Fall 2020 Survey: Impact of the COVID-19 Pandemic on Duchenne

PPMD has launched our second COVID-19 Pandemic Impact Survey related to your experiences during the pandemic for accessing care, trials, and approved therapies. Thank you to everyone who completed our first survey earlier in the spring….

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August 26, 2020

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways As we look towards this next school year, PPMD recognizes that our community is facing new and difficult choices about in-person and virtual learning. To help…

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July 30, 2020

Join PPMD’s Back-To-School Webinar Series

Join PPMD’s Back-To-School Webinar Series Join us for PPMD’s back-to-school webinar series tackling questions and concerns the community has about both in-person and virtual learning environments. PPMD’s Care Team will be joined by leading experts…

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April 21, 2020

New Charitable Income Tax Deduction Further Incentivizes Your Gift to PPMD

COVID-19 may have altered our lives, but not our priorities. PPMD needs your help now to continue to fund the fight to end Duchenne. And thanks to the recently enacted stimulus bill, known as the…

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April 21, 2020

Assistance Programs Available to Duchenne Families During the COVID-19 Pandemic

There are currently two programs providing direct assistance to Duchenne families during the COVID-19 pandemic to help with costs for day-to-day expenses. Please be sure to check them out and let others in the community…

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