January 23, 2025

Update from PPMD’s 2025 Duchenne Healthcare Professionals Summit

PPMD recently convened over 360 healthcare professionals, researchers, and industry partners, including representatives from the FDA, NIH, CDC, and international representatives in one room to discuss the latest updates in dystrophinopathy care and research at…

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February 9, 2024

Update From PPMD’s 2024 PPMD Duchenne Healthcare Professionals Summit

PPMD recently hosted our fifth in-person Duchenne Healthcare Professionals Summit in Sanibel, FL. Over the course of three impactful days, we were joined by around 300 healthcare professionals, researchers, and industry partners to collaborate, connect,…

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January 29, 2024

PPMD 2023 Duchenne Early Care Meeting Report Published: Enhancing Support in Early Diagnosis

Last year, PPMD hosted a Duchenne Early Care meeting as part of the 2023 Duchenne Healthcare Professionals Summit, focusing on key aspects of care for the youngest children in our Duchenne community, in preparation for…

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January 17, 2024

PPMD Hosts 2024 Duchenne Healthcare Professionals Summit

Each January, PPMD brings together experts in the field for our Duchenne Healthcare Professionals Summit to ensure that caring for individuals with the latest information and technology remains a constant priority.  Healthcare professionals from PPMD’s…

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January 5, 2024

The Importance of Assisted Cough

It’s winter, which means respiratory virus season is upon us. Those living with Duchenne and Becker may find themselves needing more support to help clear thick secretions that often accompany respiratory illness. Using assisted cough…

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December 4, 2023

Winter Safety, Prevention & Preparedness

With winter quickly approaching, PPMD wants to remind you about the importance of safety, prevention, and being prepared for potential emergencies such as falls and fractures, acute respiratory illness, and other unpredictable situations.  SAFETY: Snow…

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October 6, 2023

Finding and Accepting Help

PPMD recently launched “Connect Community Chats” to provide an opportunity for families and individuals living with Duchenne to come together virtually in a small group to talk about important life topics. The most recent discussion…

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October 5, 2023

What is Palliative Care? Understanding an additional layer of support

Many families are unfamiliar with Palliative Care and often confuse the services for hospice or end of life care. However, palliative care is so much more. Palliative Care is a specialized system of care aimed…

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September 29, 2023

WATCH: Advocating for Access: Insurance 101 (Webinar Recording)

Navigating insurance can be daunting – from decoding acronyms, to understanding the types of health plans, and more. During September’s Advocating for Access webinar, the PPMD and Little Hercules Foundation teams dug into some of…

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September 19, 2023

RSV, COVID, and Flu – oh my!

As school has started and the winter season approaches, the increase in respiratory viruses is soon to come. This year it’s important to protect yourself, your children and your family from all respiratory viruses, but…

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