April 8, 2022

The Heart is a Muscle Too: Developing an Action Plan for Cardiac Care

Someone says, “wait and see,” while someone else says, “start medication early.” Someone recommends cardiac MRI, while someone else suggests, “echo is probably fine.” All the while, new technology abounds, new drugs come to market,…

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March 30, 2022

WATCH: Carrier Cardiac Care (Webinar Recording)

PPMD hosted a webinar on March 22, 2022 to discuss cardiac care for female carriers of Duchenne and Becker. Panelists discussed the importance of carrier health, learnings from the PPMD-sponsored carrier study at Nationwide Children’s…

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March 17, 2022

PPMD Convenes 80+ Expert Cardiologists & Professionals for Duchenne Cardiac Care Meeting

PPMD is spending this week joined by 80+ expert cardiologists, key neuromuscular providers, members of the FDA and NIH, and industry partners to discuss cardiac care in Duchenne. We all know that the heart is…

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March 3, 2021

PPMD Awards University of Florida Wellstone Center $348,891 Grant for Duchenne Gene Therapy Research

PPMD is pleased to award the University of Florida (UF) Wellstone Muscular Dystrophy Cooperative Center a grant for $348,891. The project titled “Understanding and Improving AAV Gene Therapy for DMD” is led by H. Lee…

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March 4, 2020

WATCH: Connect with the Experts: Cardiac Care & Research – Webinar Recording

Last week, PPMD hosted the first quarterly Connect with the Experts webinar around cardiac care and research. Dr. Linda Cripe (Nationwide Children’s), Dr. Lee Sweeney (University of Florida), and PPMD’s Eric Camino (Director of Research…

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December 18, 2019

PPMD Awards $465,000 Grant to The Ohio State University to Rescue Cardiac Dystrophin & Function in Duchenne

Parent Project Muscular Dystrophy is excited to announce that Renzhi Han, an associate professor at The Ohio State University College of Medicine, will receive a $465,000 grant to study the potential use of in vivo…

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October 24, 2019

PPMD Awards $148,000 in Grants to Improve Cardiac Function in Duchenne

Parent Project Muscular Dystrophy (PPMD) is excited to announce that Dr. Kan Hor from Nationwide Children’s Hospital and Dr. Dongsheng Duan from the University of Missouri received grants to further develop their research into potential…

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October 2, 2019

Duchenne UK and PPMD Award $200,000 Grant to Develop an Accepted Set of Patient Reported Outcomes

Parent Project Muscular Dystrophy (PPMD) and Duchenne UK announced the joint funding of a project to create a set of agreed and validated Patient Reported Outcomes (PROs) for use in Europe and the US. The…

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September 17, 2019

PPMD Awards University of Florida $1 Million for Novel Gene Therapy Approach Targeting the Heart

As you know, one of PPMD’s priorities in the fight to end Duchenne is maintaining cardiac health and preventing heart disease or dilated cardiomyopathy (DCM), better known as heart failure in Duchenne muscular dystrophy. Heart…

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April 17, 2019

PPMD Awards $100,000 Grant to Nationwide Children’s Hospital to Further Explore GALGT2 Gene Therapy

PPMD is excited to announce that Drs. Paul Martin and Kevin Flanigan from the Research Institute at Nationwide Children’s Hospital have completed work under a $100,000 grant exploring GALGT2 gene therapy technology as a potential treatment…

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