cardiac

September 27, 2024

PPMD Hosts Meeting Exploring the Case for Cardiac Transplantation in Duchenne

As part of our ongoing Cardiac Initiative, PPMD is proud to host the upcoming professional meeting, “Expanding Access to Heart Transplantation: Focus on Muscular Dystrophy,” taking place September 27-28, 2024, at Stanford University. This important…

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Mapping Out a Path Forward: PPMD Convenes Representatives from 21 Academic Centers and 11 Industry Partners for 2024 Cardiac Care Workshop

Last week, PPMD held the 2024 Cardiac Care Workshop in Baltimore, Maryland, which included 40 academics and professionals and representatives from 11 industry partners to discuss how to move beyond the current state of cardiac…

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PPMD Hosts 2024 Cardiac Workshop, May 9-10

PPMD is excited to bring together experts in the cardiac field, spanning clinicians and researchers, to the third annual PPMD Cardiac Workshop, May 9-10, 2024 to delve into current and emerging issues in cardiac care…

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November 14, 2023

Advancing Duchenne Cardiac Care: A Year of Impact and Gratitude

Cardiac care is at the heart of Duchenne, which is why it remains a critical element of PPMD’s efforts to optimize care and research through our ongoing Cardiac Initiative. As we look back on the…

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August 22, 2023

PPMD Awards $65,000 to Vanderbilt University Medical Center to Advance Understanding of Duchenne Cardiomyopathy

PPMD is excited to award Dr. Jonathan Soslow (Vanderbilt University Medical Center), and his collaborators Drs. Larry Markham (Riley Children’s Hospital) and Christopher Spurney (Children’s National Medical Center), a $65,000 grant to characterize microRNA and…

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The Heart Is a Muscle Too: PPMD Convenes 80+ Professionals for 2023 Cardiac Care Workshop

PPMD Convenes 80+ Professionals for 2023 Cardiac Care Workshop Last week in New Orleans, PPMD held the 2023 Cardiac Care and Duchenne – Professionals Workshop, convening over 80 clinicians, researchers, and industry partners to continue…

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PPMD Announces Cardiac Care Workshop Report, Advancing Understanding of Heart Disease in Duchenne

The heart is a muscle too. And PPMD has been asking questions about the heart for many years: What do we know and what do we need to learn about heart disease (cardiomyopathy)? If treatments…

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Breaking News! PPMD Awards $2 Million to ACTION Network to Revolutionize Duchenne Cardiac Care

PPMD is pleased to announce a $2 million grant to be awarded to the Advanced Cardiac Therapies Improving Outcomes Network (ACTION), a learning health system focused on children and adult congenital heart disease patients at…

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The Heart is a Muscle Too: Developing an Action Plan for Cardiac Care

Someone says, “wait and see,” while someone else says, “start medication early.” Someone recommends cardiac MRI, while someone else suggests, “echo is probably fine.” All the while, new technology abounds, new drugs come to market,…

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WATCH: Carrier Cardiac Care (Webinar Recording)

PPMD hosted a webinar on March 22, 2022 to discuss cardiac care for female carriers of Duchenne and Becker. Panelists discussed the importance of carrier health, learnings from the PPMD-sponsored carrier study at Nationwide Children’s…

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