PPMD is excited to announce our 2022 schedule of educational events, including PPMD’s Annual Conference (hybrid in-person & virtual meeting), End Duchenne Tour (both in-person and virtual stops), and Advocacy Conference (virtual).

New this year, PPMD will host The Power of Us Summit Series, a series of mental wellness retreats bringing together members of our community to discuss topics related to mental health and family relationships, with the goal of developing tools and resources to help us enhance daily life.

Featuring a variety of in-person, virtual, and hybrid events this year, we look forward to bringing our community together to learn, to raise our voices, and to connect!

* Please note, PPMD will continue to evaluate the public health climate in regards to our in-person events and will communicate any format changes if they occur.

END DUCHENNE TOUR

Registration opens approximately one month prior to each event

PPMD’s End Duchenne Tour stops are typically one-day long events, providing updates on the latest clinical trials and early-stage research, care standards, and practical resources. Our Tour stops also give families the opportunity to interact with vetted leaders in Duchenne, connect with other local families on the same journey, and share ways to become involved in PPMD’s programs and The Duchenne Registry.

We will be kicking off this year’s Tour virtually with families in Hawaii and Alaska, and look forward to connecting with the Duchenne community in-person in Georgia, Pennsylvania, Michigan, Idaho, and Indiana over the coming months. Although each tour stop is marketed to those in the broader region, we welcome anyone to register and attend regardless of where you live!

• Alaska and Hawaii (virtual) – Saturday, February 26
• Atlanta, GA – Sunday, May 1
• Pittsburgh, PA – Saturday, May 21
• Detroit, MI – Sunday, August 21
• Boise, ID – Saturday, October 22
• Indianapolis, IN – Saturday, November 12

ADVOCACY CONFERENCE

March 8, 2022 – Virtual
Registration will open in February

Each year, PPMD ensures that the Duchenne community is at the forefront of the hearts and minds of Congressional leaders and champions in Washington, DC by convening our annual Advocacy Conference (this year, virtually once again) at the start of the annual Appropriations season. These efforts help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policy makers.

There’s no reason to be intimidated! PPMD will pair you with other experienced family advocates and will get you well prepared ahead of our virtual meetings on Tuesday, March 8th with online educational training sessions. With the return of our virtual format, this is the perfect year to join us as an advocate!

POWER OF US SUMMIT SERIES

A series of meetings for Caregivers, Teens & Adults, and Siblings

The Power of Us is stronger than any of us alone.

Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize just how deeply every family member is affected by a Duchenne diagnosis. This year, PPMD is introducing The Power of Us Summit Series, a series of mental wellness retreats bringing together members of our community to discuss topics related to mental health and family relationships, with the goal of developing tools and resources to help us enhance daily life.

This first meeting in our series will focus on parents, grandparents, and primary caregivers and will take place April 28-30 in Atlanta, GA. Additional Power of Us Summit Series mental wellness meetings are also being planned for:

• Teens and adults with Duchenne/Becker (Scottsdale, AZ; June 2022)
• Siblings (Pittsburgh, PA; May 2022)

More information for these two meetings will be available soon.

ANNUAL CONFERENCE

June 23-26, 2022 – Scottsdale, AZ (In-Person & Virtual Hybrid)
Registration will open in March

We are excited to host PPMD’s 2022 Annual Conference, June 23-26 in Scottsdale, AZ as an in-person and virtual hybrid event this year. Now in its 28th year, this exceptional conference has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. Families, physicians, researchers, caregivers, industry partners and those living with Duchenne and Becker gather to connect, share information, and learn the latest progress in the fight to end Duchenne.

Our conference is like no other. Here the key is community. Whether you will be joining us in-person or virtually this year, all pieces of this incredible community will come together to learn, to listen, and to look forward at driving change.

The field is ripe with opportunity and during PPMD’s Annual Conference partnerships are built, questions are asked and answered, and lasting friendships are formed.