This past weekend, PPMD was joined by families, individuals with Duchenne and Becker, clinicians, researchers, industry partners and local vendors for 2 days of community building, knowledge sharing, and meaningful connections at our PPMD Together event in Minneapolis, MN. 

The event started with a social gathering on Friday evening for parents, caregivers and adults with Duchenne and Becker to get to know one another and connect with familiar faces. On Saturday, PPMD kicked off a day of programming with a community and industry resource fair featuring care and support educational materials, local community resources, and a chance to speak one on one with industry representatives. 

The day was filled with robust discussions around the importance of advocacy-at both the state and federal levels, highlighting the impact that every single person in this community can make by raising awareness and sharing their stories and participating in the Duchenne Registry. Participants also exchanged practical wisdom for navigating daily challenges, offering real-world strategies for everyday life. These discussions highlighted the power of collective experience in transforming how families navigate this diagnosis.  

Both days, children were able to attend a dedicated Kids Track where they played games, had a pizza party and watched movies while their parents were able to focus on connecting with one another and participate in important discussions around care, research, and daily life.

PPMD Together events are an earnest commitment to the dynamic needs of our community, bringing together families, industry partners, care providers, and advocates in a collaborative effort, shaping a future where every individual affected by Duchenne and Becker can thrive. 

Join us for our next PPMD Together event in Charlotte, NC September 19-20, 2025. Stay tuned for registration and additional details coming soon.

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