PPMD, NORD and PQHE Present ‘Living with Duchenne Muscular Dystrophy in 2023’

PPMD and the National Organization for Rare Disorders (NORD) recently hosted a community webinar discussing the current and future landscape of Duchenne care and therapies. PPMD is proud to collaborate with NORD on this event, bringing together a panel of expert clinicians, caregivers, and members of the PPMD team to discuss developments in the management of Duchenne and care, from diagnosis through adulthood.

If you missed the live event, the webinar is available to watch on demand.

Tune in to learn more about:

• The diagnosis of Duchenne and the importance of early identification
• Newer treatment options for Duchenne
• Functional outcomes of current Duchenne therapies
• How caregivers can communicate goals of care
• The transition from pediatric to adult care
• Identifying key components of multidisciplinary care to optimize outcomes