Each January, PPMD brings together experts in the field for our Duchenne Healthcare Professionals Summit to ensure that caring for individuals with the latest information and technology remains a constant priority. 

Healthcare professionals from PPMD’s Certified Duchenne Care Centers and other neuromuscular programs providing dystrophinopathy care, as well as researchers, academics, and industry partners, gather at the Summit for discussion, collaboration, and connection, with the goal of learning from each other in order to continually improve care for every person and every family with Duchenne and Becker.

Summit sessions will update the professional community on advancements in research and care while encouraging collaboration and networking across centers,  identifying and addressing gaps in knowledge. Topics this year include gene therapy and combination therapies, diversity, equity, inclusion and ethics, Becker muscular dystrophy, endocrinology and bone health, behavior, and more.

“PPMD prioritizes the regular and intentional convening of the professional community to encourage the sharing of data and knowledge while engaging experts in the field to foster innovation,” said Rachel Schrader, MS, APRN, CPNP-PC, PPMD’s Vice President of Clinical Care and Education. “Our hope is continued investment in these efforts will lead to improved care for every person and every family living with Duchenne and Becker.”

PPMD expects a diverse attendance of neurologists, physiatrists, nurse practitioners, nurses, cardiologists, pulmonologists, endocrinologists, dietitians, social workers, genetic counselors, and physical, occupational and speech therapists, as well as researchers, academics, research coordinators, and industry partners. This meeting provides a safe space where this important subset of our community can freely exchange ideas and knowledge among their peers, fostering the candid discussions that are critical for addressing gaps in care and advancing treatment methodologies for individuals with Duchenne.

Updates from the 2024 Summit

Shortly after the Summit, PPMD will share a comprehensive recap blog highlighting the key themes, discussions, and learnings emerging from the event to ensure the wider community benefits from the insights gained during these discussions. 

Additionally, learnings from the 2024 Summit will be shared at PPMD’s 30th Annual Conference this summer in Orlando, Florida – register today to join us June 27-30, 2024!