November 6, 2018

PPMD Designates Children’s Hospital of Wisconsin a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named the Neuromuscular Disorders Program at Children’s Hospital of Wisconsin to be the 21st clinic to be named a Certified Duchenne Care Center PPMD’s Certified Duchenne Care Center Program,…

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November 5, 2018

Calling All Adults with Duchenne & Becker MD: Join the 2019 PPMD Adult Advisory Committee!

Been looking for a way to engage with the community a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts? Interested in serving as a…

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November 2, 2018

End Duchenne Tour Recap: Dallas, TX

PPMD was thrilled to head south to Dallas Texas for our October End Duchenne Tour stop on October 13, 2018. More than 80 people came together to learn about the latest information and resources for Duchenne…

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November 1, 2018

PPMD Designates Children’s National Health System a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Children’s National Health System our 20th Certified Duchenne Care Center. PPMD’s Certified Duchenne Care Center Program, which supports standardized, comprehensive care and services for all people living with Duchenne, began…

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October 31, 2018

WATCH: An Update on Corticosteroids – Webinar Recording

PPMD and Dr. John Brandsema hosted a webinar on October 24, 2018 to discuss the current guidelines for steroid use in Duchenne muscular dystrophy, emerging data, and best practices. If you missed the live event,…

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October 25, 2018

Behavior Challenges and Duchenne: Part 3 – Resources

Psychosocial health (also called “mental health”) includes behavior, emotional adjustment, learning/school success, and relationships. These things are very important for overall well-being and quality of life. Addressing the psychosocial needs of a person with Duchenne is…

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October 16, 2018

Behavior Challenges and Duchenne: Part 2 – Establishing Consequences

Psychosocial health (also called “mental health”) includes behavior, emotional adjustment, learning/school success, and relationships. These things are very important for overall well-being and quality of life. Addressing the psychosocial needs of a person with Duchenne is…

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October 15, 2018

WATCH: Is Myostatin Still a Potential Therapeutic Target? – Webinar Recording

Myostatin is a negative regulator of muscle growth – a protein that stops muscle building and doesn’t let them get too big, as part of the natural regeneration process. In other words, if we can…

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October 11, 2018

Pediatrics Supplement Focuses on Specialty Care for People with Duchenne

The supplement “Specialty Care for the Patient with Duchenne Muscular Dystrophy” was recently published in the October 2018 issue of Pediatrics. The supplement aims to raise the standard of care and improve quality of life…

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October 9, 2018

2018 World Muscle Society Update

Last week, PPMD’s Founding President and CEO, Pat Furlong and our SVP of Research Strategy, Abby Bronson attended the annual World Muscle Society (WMS) meeting, this year in Mendoza, Argentina. Pat and Abby have provided…

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