October 21, 2019

Whataburger Customer Promotion for Coach To Cure MD Raises $89,807 to Benefit PPMD

We are so excited to announce that Whataburger’s first-event customer promotion to benefit PPMD raised $89,807! Whataburger partnered with Coach To Cure MD to run this promotion in the Dallas/Fort Worth area locations. “We are…

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October 21, 2019

Transitioning to a New Role – While Keeping My Arms Wrapped Around Duchenne

Over the last few weeks, I have spent many hours reflecting on just how privileged I have been to share this journey with so many of you, and have spent hours recounting highlights among these…

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October 17, 2019

PPMD Announces Arkansas Children’s Hospital as 28th Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Arkansas Children’s Hospital the 28th Certified Duchenne Care Center (CDCC). This expanding program of elite centers, created in 2014 as part of PPMD’s Certified Duchenne Care Center Program,…

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October 11, 2019

Meet the PPMD Care Team

For 25 years, care has been at the heart of PPMD’s mission to end Duchenne. Fast forward to today, the Certified Duchenne Care Center (CDCC) Program has identified more than 28 neuromuscular centers that are…

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October 11, 2019

Calling All Adults with Duchenne & Becker MD: Join the 2020 PPMD Adult Advisory Committee!

Been looking for a way to engage with the community a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts? Interested in serving as a…

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October 9, 2019

2020 Make Every Day Count Award Winner: Gretchen Brentner Egner

Race to End Duchenne and Team Danny are pleased to announce the winner of the 2020 Make Every Day Count Award: Gretchen Brentner Egner! The Make Every Day Count Award was started in 2019 to honor…

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October 9, 2019

2019 World Muscle Society Update – Day 4

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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October 7, 2019

Santhera Announces Presentation by ReveraGen of Positive 18-Month Data with Vamorolone in Duchenne

Santhera Pharmaceuticals has announced the presentation of data showing continued improvement of muscle function and improved tolerability compared with corticosteroids of 18-month vamorolone treatment in Duchenne. PPMD was an earlier funder of this important research…

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October 7, 2019

2019 World Muscle Society Update – Days 2 & 3

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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October 4, 2019

PTC Announces New Real-World Analysis Demonstrating Translarna Slows Disease Progression in Duchenne

As PPMD reported in our World Muscle Society recap yesterday, PTC Therapeutics has announced that data from their STRIDE registry demonstrate that Translarna preserves lung function in children and adolescents compared with a matched cohort…

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