Blog

New Charitable Income Tax Deduction Further Incentivizes Your Gift to PPMD

COVID-19 may have altered our lives, but not our priorities. PPMD needs your help now to continue to fund the fight to end Duchenne. And thanks to the recently enacted stimulus bill, known as the…

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Assistance Programs Available to Duchenne Families During the COVID-19 Pandemic

There are currently two programs providing direct assistance to Duchenne families during the COVID-19 pandemic to help with costs for day-to-day expenses. Please be sure to check them out and let others in the community…

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WATCH: Family Friday – Coping with Stress and Anxiety During COVID-19

Family Friday: COVID-19, Social Distancing, & Quarantine – Coping with Stress and Anxiety For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD…

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PPMD Signs Onto Letter Urging Guidance to Prohibit Discrimination During Medical Rationing

Today, PPMD joined over 400 patient organizations in a letter led by the American Association of People with Disabilities (AAPD) urging the Department of Health and Human Services (HHS) to issue further guidance addressing the…

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Survey: Impact of the COVID-19 Pandemic on Duchenne

Today, PPMD launched a survey to gain insight directly from the Duchenne and Becker community on the impact of the COVID-19 pandemic related to care, clinical trials, and access to FDA approved therapies. This information…

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Sarepta Therapeutics Shares COVID-19 Resources

Sarepta Therapeutics has shared a new COVID-19 resource page on its website, along with a new video providing contact phone numbers for those whom may have questions about continuity of access to Sarepta sponsored clinical…

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PPMD Moves Date of 2020 Annual Conference to July 23-25

PPMD Moves Date of 2020 Annual Conference to July 23-25, 2020 In light of the ongoing uncertainty brought about by the COVID-19 pandemic, PPMD has decided to move the date of our 26th Annual Conference…

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Thank you for always being our strength

Thank you for always being our strength Re·sil·ience: (noun) the capacity to recover quickly from difficulties; strength. Our Duchenne community is the definition of resilience. And we have never had that resilience challenged like we…

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WATCH: COVID-19, Social Distancing & Quarantine – Coping with Stress & Anxiety

Webinar Recording: COVID-19, Social Distancing & Quarantine – Coping with Stress & Anxiety The stress brought on by self-isolation and social distancing during a pandemic can be challenging to manage, especially when so many of…

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End Duchenne Tour 2020: Virtual Tour Stop in Atlanta

End Duchenne Tour 2020: Virtual Tour Stop in Atlanta On the morning of March 14, the Duchenne community in and around Atlanta, GA, gathered for PPMD’s first virtual End Duchenne Tour Stop of the year….

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