Blog

PPMD Awards $450,000 to Collaborative Duchenne Muscular Dystrophy Care Projects

Parent Project Muscular Dystrophy (PPMD) is pleased to announce awards to three collaborative Certified Duchenne Care Center (CDCC) network projects totaling $450,000. Under PPMD’s 2021 CDCC Inter-Institutional Collaboration Grant Program, these grants will support the…

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Register Today for PPMD’s 2021 Annual Conference — Virtual Edition!

PPMD’s Annual Conference – Virtual Edition Registration is now open for PPMD’s 2021 Virtual Annual Conference! 2021 remains an extraordinary time for our global community. We are getting closer to safer days ahead and we want…

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Duchenne Funding Letter Update: Progress in the House of Representatives

We’ve had a tremendous start in the House of Representatives for this year’s Duchenne Funding Request to Congress, with 31 House members signed on so far! Help us increase this number by contacting your member…

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WATCH: Santhera Pharmaceuticals Duchenne Drug Development Update (Webinar Recording)

Santhera Pharmaceuticals joined Parent Project Muscular Dystrophy (PPMD) for a webinar on March 24, 2021 to provide an update to the community about the investigational therapy vamorolone, the use of steroids to treat Duchenne muscular…

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WATCH: Solid Biosciences Presents Safety & Efficacy Update (Webinar Recording)

On March 16, 2021, Solid Biosciences joined PPMD for a webinar to provide a safety and efficacy update on the ongoing IGNITE DMD phase I/II clinical study of SGT-001 microdystrophin gene therapy in patients with…

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Drive-by Birthday Fundraiser

Drive-by Birthday Fundraiser When hosting your annual event isn’t possible due to COVID restrictions, trying something new can be just as successful! Rachel and James Poysky celebrated their son Joel’s 18th birthday with a Coach…

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PPMD’s Certified Duchenne Care Center Program – 2020 Impact & Progress

PPMD’s Certified Duchenne Care Center (CDCC) Program was developed to make comprehensive Duchenne care and services, provided in agreement with the CDC Care Considerations, available and accessible to as many families as possible, and to strengthen clinical trial…

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Solid Reports Efficacy & Safety Data from Ongoing IGNITE DMD Clinical Trial & Resumption of Patient Dosing

Solid Biosciences has provided a safety and efficacy update on the ongoing IGNITE DMD phase I/II clinical study of SGT-001 microdystrophin gene therapy in patients with Duchenne. Upcoming Webinar: Join PPMD and Solid tomorrow, March…

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Gaming to End Duchenne

Gaming to End Duchenne What better way to plan a DIY fundraiser than with a built-in community? Patrick Denger wanted to do something to support PPMD’s mission, so he reached out to his community of…

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Action Alert! Support Progress in the Fight Against Duchenne

Urge your House and Senate Members to Support the 2022 Duchenne Funding Request & BENEFIT Act 20 years ago, Congress held a first-ever hearing on muscular dystrophy, paving the way to the landmark MD-CARE Act…

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