April 28, 2015

Let’s Get Them Moving Workshop: Our First Steps Toward That Goal

Yesterday, Parent Project Muscular Dystrophy and Duchenne Parent Project-Netherlands (DPP) co-hosted the first ever conference on assistive technology for Duchenne muscular dystrophy. There were twenty-five participants in the workshop, from six countries, representing academia (both researchers and…

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January 1, 2015

Eplerenone FAQs — Early Treatment of Cardiomyopathy in Duchenne

Below are a list of FAQs regarding the early treatment of cardiomyopathy in Duchenne using eplerenone. We consulted Dr. Subha Raman of The Ohio State University Wexner Medical Center and Dr. Linda Cripe of Nationwide Children’s…

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December 18, 2014

The Solid Suit: Combining Forces to Enhance Strength

It was a bit like being in the midst of a dream. You are seated at a table, looking out high above a river. Surrounding you are some of the world’s top experts in Duchenne…

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July 15, 2014

Duchenne Cardiac Working Group Recap

Care of the heart in Duchenne is not a simple business. As a community, we realize: Prescriptions for cardiac care and surveillance differ widely between both practices and providers. Large gaps exist in cardiac research….

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