by: Parent Project Muscular Dystrophy
Navigating Access & Resources
Navigating insurance access for medical care such as approved therapies or equipment can be daunting.
Parents, patients, and healthcare providers spend hours putting together documents and speaking on the phone trying to convince payers to approve what is needed to keep us, our children, or our patients, as healthy as possible.
It’s a complicated and often overwhelming process, but you don’t have to do it alone. It’s important to know while it is a process, there are resources out there to help and policy determinations are not always final.
To make navigating this process easier, PPMD has assembled resources to help guide you through this complex process.
Access & Coverage Resources
PPMD has compiled a list of resources for approved therapies and equipment including sample letters of medical necessity, relevant publications, and therapy specific patient access programs:
Advocating for Access Webinar Series
Watch PPMD’s 3-part Advocating for Access webinar series to help understand commercial vs state insurance, benefits, waiver programs and other resources that families may qualify for.
WATCH: Advocating for Access – Insurance 101
WATCH: Advocating for Access – Overview of Medicaid DUR and P&T Meetings
WATCH: Advocating for Access – Navigating Approved Therapies in Duchenne
State Specific Resources
Every state is different in terms of resources and eligibility. To find specific local resources, visit PPMD’s State Specific Resource page.
State Resources >
PPMD for You: Personalized Support
If you still have questions about accessing a specific therapy, piece of equipment, or care for yourself or your child, you can schedule a PPMD For You virtual meeting here. We are here to help guide you through this process and connect you to helpful resources.
PPMD continues to work closely with health insurance payers (public and private) to increase their understanding of Duchenne, Becker and Carriers and how access to available and emerging interventions, therapies, and equipment can improve health outcomes for our community.
PPMD For You >
