We are thrilled to announce the launch of PPMD’s Newborn Screening Action Center, a powerful resource designed to both educate and empower you as we work to ensure that every baby, in every state, has equal access to timely diagnosis and care.

Newborn screening is critical in preventing the delays that can leave families without the support and accurate information they need during a crucial time. With the drug pipeline brimming with promising new therapies, and given the progressive nature of Duchenne and Becker, early diagnosis is essential for offering therapeutic interventions as soon as possible. For over a decade, PPMD has led the charge to establish nationwide newborn screening for Duchenne, addressing this urgent need.

The launch of PPMD’s Newborn Screening Action Center is a milestone in our ongoing effort to secure the inclusion of Duchenne in newborn screening panels across the country. With this resource, you’ll find the tools you need to advocate effectively and the information necessary to navigate the screening process.

Explore PPMD’s NBS Action Center

PPMD’s Newborn Screening Action Center not only serves as a platform for advocacy but also provides essential information for families and healthcare providers:

• Information for Families: Learn about what newborn screening for Duchenne involves, and why it’s important.
• Resources for Healthcare Providers: Access guidelines, publications, and additional resources to support your patients.
• Advocacy Tools: Discover how you can take action to help ensure Duchenne is included in newborn screening programs nationwide.

As our progress continues, we will regularly update PPMD’s Newborn Screening Action Center with new resources, ensuring that you have the most current tools and information available.

This resource is particularly timely as we enter September, which is both Duchenne Action Month and Newborn Screening Awareness Month. As we approach World Duchenne Awareness Day on September 7th, we encourage everyone to get involved, spread the word, and support these efforts.

Join Us in the Fight for Every Future

The Newborn Screening Action Center is more than a resource—it’s a call to action. PPMD is committed to ensuring that every family has the support they need from Day One. Together, we can make a difference.

Visit PPMD’s Newborn Screening Action Center today and find out how you can get involved in advocating for newborn screening in your state.