Happy New Year’s Eve!

We’re almost there. At midnight we will ring in a new year, one that I hope will bring with it incredible experiences, happy memories, and lots of love.

I am passionate about the impact of the Dystrophinopathy Clinical Research Network. In my role as Director of Data and Technology Strategy at PPMD, I work closely with researchers, clinicians, regulators, advocates, and citizen scientists who share in PPMD’s commitment to revolutionizing how we study, develop, and will ultimately rely on sequential therapies. The time is now to improve how we collect, share, and analyze data to accelerate progress. Give before midnight tonight to support development of the Dystrophinopathy Clinical Research Network (DCRN) and have your gift DOUBLED!

In this reality of evolving technology and patients’ increased ability to share data, there is a critical need for cohesive infrastructure that helps track what happens when individuals are on more than one therapy and how we can continue to evolve standards of care in this new era.

It is new research for a new reality. As the leading Duchenne patient advocacy organization, PPMD is uniquely positioned to unite the community and drive a powerhouse of innovation.

Join me in advancing the research evolution. With your gifts and our shared commitment to accelerating progress, we will develop the DCRN and support new research for a new reality. Help us reach our goal of $500,000 by midnight tonight!

PPMD’s Dystrophinopathy Clinical Research Network will use patient data, a clinical network and expertise in collaboration to give people with Duchenne and Becker a redefined version of the future. Together, we will accelerate the pace of research and discovery from decades to years and revolutionize how we develop and consider add-on therapies as we look to slow progression and loss of function.

We are at a pivotal moment in the fight to end Duchenne. With your support, together we can advance the research evolution. Midnight tonight is the deadline to double your gift to support the development of PPMD’s Dystrophinopathy Clinical Research Network. Please give what you can.

I wish you and your loved ones a peaceful, safe, and happy New Year.

Sincerely,
Megan Freed, PPMD

P.S. Ring in the New Year with a gift to PPMD to move the science further, faster. Every gift before midnight tonight will be DOUBLED.