Ways to Connect

Find a local Connect Group

Online interactions are great, but nothing can replace in-person connections with other families living with Duchenne. PPMD has local Connect groups all over the country for this very reason.

Previously known as FACES, these groups serve many functions, but primarily exist to help you along this journey.  Reaching out to your local group will let them know that you are there. Maybe you don’t want anything, or maybe you just want to “listen” for awhile — that’s ok.

No one needs to go through this experience alone.  Finding families to connect with will help you to know that there is hope and that you have support whenever you need it.

The PAAC: GET INVOLVED WITH THE TEEN & ADULT COMMUNITY

The PPMD Adult Advisory Committee (PAAC) amplifies the teen and adult voices of individuals living with Duchenne and Becker through advocacy, education, mentorship, and awareness. The PAAC hosts regular virtual socials for the teen and adult community to give people with Duchenne and Becker a place to connect and discuss topics that are important to daily life. Learn more.

PPMD’S TWEEN SOCIALS

PPMD’s quarterly virtual Tween Socials are a chance for people with Duchenne/Becker ages 9-14 to get together, play some games, and socialize with their peer group. Learn more.

PPMD’s SIBS CONNECT

PPMD’s Sibs Connect group engages individuals that have siblings with Duchenne and Becker, and fosters connecting with other siblings, sharing concerns and ideas, and supporting siblings at every step of their journey. The group is run by siblings, for siblings and for now is geared toward those ages 16 and older. We will expand to younger siblings in the future! Learn more.