PPMD Together

In 2024, we introduced PPMD Together, a meeting series designed to emphasize connection, address quality of life issues, and provide insights into Duchenne care.

These gatherings offer us an opportunity to reflect on the progress achieved over the past three decades and the work we will continue – together – as we fight for every future. The meetings also provide an opportunity for families to interact and learn from one another and other members of the community including industry partners, care providers, and advocates.

Upcoming Meetings

Registration is now open for our first PPMD Together event of 2025 in Minneapolis! Learn more:

Stay tuned for registration and additional information coming soon:

  • Charlotte, NC | September 19-20, 2025
  • Virtual – date to be announced

Previous Meetings

2024 featured two in-person gatherings: