As we approach World Duchenne Awareness Day, join PPMD for a special webinar, “PPMD Advocacy: Raising Our Voices in 2024 and Beyond,” on Thursday, September 5, 2024, at 1:00pm ET. PPMD Advocates from throughout the Duchenne and Becker community will reflect on PPMD’s advocacy efforts in its 30th anniversary year, highlighting key policy achievements and ongoing work to promote rights, inclusion, and well-being for those with Duchenne and Becker. There are so many ways you can raise your voice for Duchenne—register today and learn how you can get involved with PPMD’s advocacy efforts.
Register NowModerator:
Lauren Stanford
Senior Director, Advocacy, PPMD
Panelists:
- Alan Chaulet, PAAC Member
- H.E. Mr. Tareq Albanai, Kuwait’s Permanent Representative to the United Nations
- Joel Wood, Duchenne Parent and President, Foundation to Eradicate Duchenne
- Marit Sivertson, Duchenne Parent and PPMD Advocate
- Marielena McGuire, Program Manager, Duchenne Muscular Dystrophy Research Program, CDMRP
