PPMD’s Decode Duchenne Program

PPMD’s Decode Duchenne genetic testing program provides free genetic testing to people in the Duchenne and Becker muscular dystrophy community. Participants must be living in the United States or Canada.

Genetic testing is performed at our designated laboratory, Revvity Omics. PPMD’s Registry & Genetics team members have expertise in dystrophinopathy and are available to ordering providers and families during the testing process to answer questions.

For Providers

Get started by selecting one of two options:

For Patients

Get started by downloading this flyer to take to your local healthcare provider so they can order genetic testing for you or your loved one. Click here for the Spanish version.

Learn more by reading the Frequently Asked Questions for Patients.

NEED HELP?

Decode Duchenne is administered by Parent Project Muscular Dystrophy and The Duchenne Registry. Decode Duchenne is presented by Sarepta Therapeutics, Founding Partner; and supported by NS Pharma. Click here to review PPMD’s policy on corporate support.

Presented by Founding Partner

Supported by