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WATCH: Family Friday – Advocating for Yourself in Research

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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WATCH: Family Friday – Reflecting on Adjusting to a New Diagnosis

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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WATCH: Capricor’s HOPE-2 Final 12-Month Data – Webinar Recording

Capricor Therapeutics recently announced positive final 12-month results from the HOPE-2 Trial. HOPE-2 was a randomized, double-blind, placebo-controlled study focused on later-stage Duchenne patients. On June 3, 2020, Capricor joined PPMD for a webinar to…

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WATCH: Family Friday – End of the School Year & Looking Ahead

Family Friday: End of the School Year & Looking Ahead For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching…

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WATCH: Family Friday – Sibling Relationships

Family Friday: Sibling Relationships For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss topics that…

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WATCH: Making the Most of Your Telehealth Appointments

Webinar Recording: Making the Most of Your Telehealth Appointments During our May 6, 2020 interactive webinar on telehealth appointments, our guest panelists discussed what to expect, what questions to ask, and how to make the…

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WATCH: Family Friday – Managing Learning Challenges at Home

Family Friday: Managing Learning Challenges at Home For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to…

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WATCH: Access to Approved Therapies and Home Care

Webinar Recording: Access to Approved Therapies and Home Care During our interactive webinar on April 29, 2020, we discussed access to approved therapies and home health considerations in the midst of a pandemic. Speakers from…

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WATCH: Italfarmaco Provides Givinostat Update

Webinar Recording: Italfarmaco Provides Givinostat Update On April 22, 2020, Italfarmaco joined PPMD for a webinar to update the community about Italfarmaco’s development of Givinostat and the recent results of the futility analysis of the…

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WATCH: Family Friday – Healthy & Fun Cooking at Home

Family Friday: Healthy & Fun Cooking at Home For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays…

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