March 24, 2023

WATCH: PPMD, NORD and PQHE Present ‘Living with Duchenne Muscular Dystrophy in 2023’

PPMD, NORD and PQHE Present ‘Living with Duchenne Muscular Dystrophy in 2023’ PPMD and the National Organization for Rare Disorders (NORD) recently hosted a community webinar discussing the current and future landscape of Duchenne care…

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February 13, 2023

Watch: Avidity Biosciences – EXPLORE44 Clinical Trial Investigating AOC 1044 – Webinar Recording

WATCH: Avidity Biosciences – EXPLORE44 Clinical Trial Investigating AOC 1044 in Individuals Amenable to Exon 44 Skipping Avidity Biosciences recently joined PPMD for a community webinar on February 8, 2023 to discuss the EXPLORE44™ clinical…

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January 31, 2023

WATCH: Capricor Data Update From Ongoing HOPE-2 Open Label Extension Trial – Webinar Recording

WATCH: Capricor Data Update From Ongoing HOPE-2 Open Label Extension Trial Capricor Therapeutics recently joined PPMD for a community webinar on January 25, 2023 to present recent data findings from the ongoing HOPE-2 open label…

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December 21, 2022

WATCH: Protect Your Lungs This Winter (Webinar Recording)

Connect With the Experts – Pulmonary Management in Winter Season As we embark into the winter season, it’s imperative that individuals with Duchenne and Becker muscular dystrophy are prepared to manage their pulmonary health and…

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December 19, 2022

WATCH: A Conversation with PTC Therapeutics (Webinar Recording)

WATCH: A Conversation with PTC Therapeutics (Webinar Recording) PTC Therapeutics recently joined PPMD for a community webinar on Friday, December 9, 2022 for a discussion regarding PTC’s history with the community and plans for the…

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October 21, 2022

WATCH: Edgewise Therapeutics – A Novel Approach to Protect Muscle in Duchenne & Becker (Webinar Recording)

PPMD was joined by Edgewise Therapeutics for a community webinar on October 19, 2022. Edgewise’s Chief Scientific Officer and Chief Medical Officer discussed the clinical development program for EDG-5506, a myosin modulator, in Becker and…

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October 20, 2022

WATCH: Connect With the Experts – Genitourinary Health (Webinar Recording)

PPMD recently hosted a webinar on genitourinary (GU) concerns (or the reproductive organs and the urinary system health) for individuals with Duchenne. Rachel Schrader, VP of Clinical Care and Education, spoke with a panel of…

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October 5, 2022

WATCH: Psychosocial Considerations for Women in Duchenne (Webinar Recording)

While we often think of the physical aspects of Duchenne and Becker muscular dystrophy, we don’t often talk about the emotional effect it has—especially for caregivers. As part of World Duchenne Awareness Day’s emphasis on…

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September 21, 2022

WATCH: Medical Management of Women & Carriers (Webinar Recording)

WATCH: Medical Management of Women & Carriers (Webinar Recording) As part of World Duchenne Awareness Day’s emphasis on Women in Duchenne, PPMD recently hosted a webinar titled, The Medical Management of Women Carriers of Duchenne….

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September 14, 2022

WATCH: SRP-9001 Data Update from Studies 101, 102, and 103 (August 2022)

On August 24, 2022, PPMD was joined by Sarepta Therapeutics for a community webinar to present a SRP-9001 gene therapy data update from Studies 101, 102, and 103, following their recent presentation at a medical…

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