December 8, 2016

How PPMD’s Certified Duchenne Care Centers Are Improving Quality & Access to Care

When I joined PPMD in 2012, care for Duchenne was all over the map. Sadly, there were over 150 clinics spread across the US, but there was no oversight of these clinics – the community…

Learn More

July 20, 2015

PPMD Awards $70,000 Grant to Talem Technologies as Part of Robotics Initiative

Grant Will Be Used to Support Pilot Study for X-Ar Exoskeletal Arm Technology Parent Project Muscular Dystrophy has awarded Talem Technologies a grant for over $70,000 to support a pilot study of their X-Ar exoskeletal arm technology. The grant…

Learn More

April 28, 2015

Let’s Get Them Moving Workshop: Our First Steps Toward That Goal

Yesterday, Parent Project Muscular Dystrophy and Duchenne Parent Project-Netherlands (DPP) co-hosted the first ever conference on assistive technology for Duchenne muscular dystrophy. There were twenty-five participants in the workshop, from six countries, representing academia (both researchers and…

Learn More

December 18, 2014

The Solid Suit: Combining Forces to Enhance Strength

It was a bit like being in the midst of a dream. You are seated at a table, looking out high above a river. Surrounding you are some of the world’s top experts in Duchenne…

Learn More