December 12, 2018

PPMD Hosts Inflammation Meeting

Steroids. If you are part of this community, you probably have strong feelings about steroids in Duchenne – feelings that can vary in range on any given day. But steroids are standard of care according…

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December 12, 2018

WATCH: The Heart of PPMD’s Research – Webinar Recording

ICYMI: Yesterday, I had the privilege of hosting an in depth look at PPMD’s cardiac research priorities in Duchenne for 2019. If you were unable to join us live, I hope you will take a…

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December 10, 2018

Your gift to critical cardiac research will be matched!

When PPMD started in 1994, research to treat Duchenne muscular dystrophy was virtually nonexistent. Nearly 25 years later, we have a clinical trial pipeline full of possibility with over 25 active trials, 30+ companies, and…

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December 6, 2018

Why the Heart Matters

Disclaimer: I am a selfish person. My sons Chris and Patrick died of heart failure. I agree the primary insult was pneumonia, but their hearts were broken in so many ways that they could not…

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November 30, 2018

Support heart health–all gifts matched!

For the last two years, you have helped support PPMD’s Gene Therapy Initiative and because of your support, we are seeing real results, real potential, real hope. But with all the progress we have made…

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November 29, 2018

An Update on Clinical Trial Innovation for Duchenne – a Master Protocol

PPMD is committed to making research and development of new medicines for families living with Duchenne as fast and efficient as possible.  Over the years, by listening to you, we have developed a clinical trials…

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November 28, 2018

PPMD Designates University of Virginia Children’s Hospital a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named University of Virginia Children’s Hospital to be the 22nd clinic to be named a Certified Duchenne Care Center PPMD’s Certified Duchenne Care Center Program, which supports standardized, comprehensive care and services…

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November 19, 2018

PPMD 2018 Annual Conference – Polling Report

The 2018 PPMD Annual Conference provided a unique opportunity to conduct live polling of those joining us, including those joining in person and those joining virtually from home. The following report (download) provides the data…

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November 18, 2018

WATCH: Engaging Families in Care Guideline Development – Webinar Recording

On Wednesday, November 14, PPMD hosted a webinar on patient-centeredness of recently published endocrine care guidelines for Duchenne. Researchers from RAND Health Care and PPMD shared the results of their project that developed a new online…

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November 6, 2018

PPMD Designates Children’s Hospital of Wisconsin a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named the Neuromuscular Disorders Program at Children’s Hospital of Wisconsin to be the 21st clinic to be named a Certified Duchenne Care Center PPMD’s Certified Duchenne Care Center Program,…

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