December 12, 2019

FDA Authorizes First Test to Aid in Newborn Screening for Duchenne

Today, the FDA authorized the marketing of the first test to aid in newborn screening for Duchenne. As you know, PPMD has been leading the effort for newborn screening in Duchenne. In October, the first…

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November 18, 2019

Finding Hope, Seeing Progress

Clinical trials are HARD. How many times have you heard that? But it’s true. Expectations, anticipation, screening, burden of participation with frequent clinic visits, blood draws, outcome measures and waiting for news. This year has…

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November 13, 2019

PPMD Certifies Motol University Hospital in the Czech Republic

PPMD is thrilled that Motol University Hospital will be the second Global Certified Duchenne Care Center.  Together with the Parent Project Czech Republic advocacy group, Jana Haberlova and the team at Motol University Hospital are doing an…

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November 12, 2019

The Duchenne Registry App is Available Now!

After twelve years of collecting data to advance research for Duchenne, PPMD’s Duchenne Registry is excited to share the new and improved Duchenne Registry Mobile App with our community of patients and caregivers! We believe the app will make…

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October 30, 2019

PPMD Launches Interactive Drug Development Pipeline

For over twenty five years, Parent Project Muscular Dystrophy has been committed to exploring and supporting innovative therapeutic possibilities. We take a cutting-edge approach to accelerate finding treatments that will end Duchenne for every single…

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October 24, 2019

PPMD Awards $148,000 in Grants to Improve Cardiac Function in Duchenne

Parent Project Muscular Dystrophy (PPMD) is excited to announce that Dr. Kan Hor from Nationwide Children’s Hospital and Dr. Dongsheng Duan from the University of Missouri received grants to further develop their research into potential…

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October 17, 2019

PPMD Announces Arkansas Children’s Hospital as 28th Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Arkansas Children’s Hospital the 28th Certified Duchenne Care Center (CDCC). This expanding program of elite centers, created in 2014 as part of PPMD’s Certified Duchenne Care Center Program,…

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October 9, 2019

2019 World Muscle Society Update – Day 4

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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October 7, 2019

2019 World Muscle Society Update – Days 2 & 3

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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October 3, 2019

2019 World Muscle Society Update – Day 1

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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