March 31, 2023

Race Athlete Spotlight: Sarah Khan

The Race to End Duchenne heads to Walt Disney World Resort® in two weeks for the runDisney Springtime Surprise Weekend.  Sarah Khan is tackling the Challenge – meaning she’ll run the 5K, 10K, and 10-Miler…

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March 21, 2023

Registration is Open! Join PPMD’s Annual Conference in Dallas

PPMD’s 2023 Annual Conference registration is now open! We hope you’ll join us June 29 – July 1, 2023 in Dallas, Texas for three incredible days of learning and connecting. This year’s Conference will feature over 60…

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February 28, 2023

Race Athlete Spotlight: Anita Mullick

Joining the Race to End Duchenne Virtual Series can be done from anywhere!  Anita supports PPMD all the way from Australia.  Our next Virtual Series is coming this May! Meet Anita Why did you choose…

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February 24, 2023

Meet the 2023 PPMD Adult Advisory Committee (PAAC)

PPMD’s Adult Advisory Committee (PAAC) welcomes 10 new members this year, bringing the group to a total of 36 individuals living with Duchenne/Becker! We range in age from 18-63 and continue to amplify the patient…

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February 16, 2023

An update about our team

I’m writing to share that Ryan Fischer is transitioning off our team next month as PPMD’s Chief Advocacy Officer. Ryan joined PPMD in 2004. During his initial interview, I mentioned that we were looking for…

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February 6, 2023

Race Athlete Spotlight: Lauren Casey

It takes a village in a Duchenne/Becker Family.  Lauren Casey is an aunt to two boys living with Becker muscular dystrophy and has joined the Race to End Duchenne in their honor.  She took on…

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January 12, 2023

Introducing PPMD Lighthouse Workshops: Let’s Navigate, Together.

Happy New Year friends. I hope this finds you greeting the start to 2023 rested and looking ahead with optimism and good energy. I am excited by many of the initiatives PPMD has in the…

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January 10, 2023

Your Registry Data at Work: More Complete Data Betters Our Understanding of Duchenne & Becker

In December, several team members of The Duchenne Registry attended the 2022 TREAT-NMD International Conference in Vancouver, Canada. The Registry has been a member of the TREAT-NMD neuromuscular network since we began collecting data in…

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January 10, 2023

Magical Miles & $300,000 Raised with the Race to End Duchenne at Walt Disney World Marathon Weekend

This past weekend, our team gathered at the most magical race weekend of the year – the Walt Disney World Marathon Weekend, presented by State Farm. And THIS is the magic of us! Our Race…

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January 5, 2023

Thank You for Helping Ensure Hearts Grow Stronger With Every Beat!

I am grateful for your generosity this year and excited to announce that we have surpassed our goal to provide support to PPMD’s Cardiac Initiative and commitment to ACTION, the Advanced Cardiac Therapies Improving Outcomes…

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