January 12, 2023

Introducing PPMD Lighthouse Workshops: Let’s Navigate, Together.

Happy New Year friends. I hope this finds you greeting the start to 2023 rested and looking ahead with optimism and good energy. I am excited by many of the initiatives PPMD has in the…

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January 10, 2023

Your Registry Data at Work: More Complete Data Betters Our Understanding of Duchenne & Becker

In December, several team members of The Duchenne Registry attended the 2022 TREAT-NMD International Conference in Vancouver, Canada. The Registry has been a member of the TREAT-NMD neuromuscular network since we began collecting data in…

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January 10, 2023

Magical Miles & $300,000 Raised with the Race to End Duchenne at Walt Disney World Marathon Weekend

This past weekend, our team gathered at the most magical race weekend of the year – the Walt Disney World Marathon Weekend, presented by State Farm. And THIS is the magic of us! Our Race…

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January 5, 2023

Thank You for Helping Ensure Hearts Grow Stronger With Every Beat!

I am grateful for your generosity this year and excited to announce that we have surpassed our goal to provide support to PPMD’s Cardiac Initiative and commitment to ACTION, the Advanced Cardiac Therapies Improving Outcomes…

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January 3, 2023

Race Athlete Spotlight: Tammy Cate

With the 2023 Walt Disney World Marathon® Weekend presented by State Farm coming up this week, we’re featuring Tammy Cate who has been a member of the Race to End Duchenne team for over 10…

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December 27, 2022

Double Your Gift Today.

Being a twin brings with it a unique closeness that few are lucky enough to experience. Having a sibling with Duchenne adds an additional layer to the relationship that is unique as well. I love…

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December 21, 2022

Help Hearts Grow Stronger and have your gift MATCHED through 12/31!

My son Logan is 10 years old. He is sharp, bright and curious, and it’s amazing to me to watch his brain at work. He has never once let Duchenne slow him down mentally, however…

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December 15, 2022

Give Today to help my Heart Grow Stronger

I was diagnosed with Duchenne muscular dystrophy at three years old. It was the late 90’s and PPMD was just beginning to grow as an organization. We found Pat Furlong and through her were connected…

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December 12, 2022

The Duchenne Registry Celebrates 15 Years of Data Collection

The PPMD team is incredibly grateful for the families who have shared their Duchenne and Becker experience with The Duchenne Registry over the years. It is hard to believe that the first families joined the…

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December 8, 2022

Your Gift Today Funds ACTION

As a cardiologist, I think about the heart day and night. It is central and fundamental to all of us. We must protect and preserve the heart so that individuals with Duchenne or Becker can…

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