Blog

PPMD Publishes 15 Year Registry Report

PPMD is excited to announce the release of the 15 Year Registry Report. This report is the culmination of data provided by registrants in The Duchenne Registry, as well as collaborative work with expert clinicians…

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Catch up on what’s happening at PPMD’s 2023 Annual Conference: Day 3

The third and final day of PPMD’s 2023 Annual Conference kicked off with the much-anticipated Gene Therapy Town Hall. Buddy Cassidy opened the session by sharing his experience as a Patient Representative for the May…

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Catch Up on What’s Happening at PPMD’s 2023 Annual Conference: Day 2

If you are here at PPMD’s Annual Conference this year, you’ve likely seen a man with a camera running around snapping pictures. Rick Guidotti, photographer and Founder & CEO of Positive Exposure, delivered keynote remarks…

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Catch Up on What’s Happening at PPMD’s 2023 Annual Conference: Day 1

This year’s Annual Conference brings together more than 1,000 families, researchers, clinicians, and industry partners from around the world for three days of informative and interactive sessions featuring the latest news in research, clinical trials,…

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Thanks to you PPMD continues forward in all areas of support

Thanks to the commitment and generosity of each of you, Parent Project Muscular Dystrophy will invest more than $13 million this year into key programs and strategies to continue to effectively move the Duchenne landscape…

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Female patient sits with doctor

Over 1,000 Free Carrier Tests Performed through PPMD’s Decode Duchenne Program!

We are thrilled to announce a new milestone achieved in the Decode Duchenne genetic testing program. We recently reached 1,000 carrier tests performed! This means that over 1,000 women have received free carrier testing through…

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Tiffany Mulloy

Race Athlete Spotlight: Tiffany Mulloy

Tiffany Mulloy recently participated in the Cincinnati Flying Pig Marathon Weekend for the 2nd year in a row, in honor of her son Allan and all those living with Duchenne. Tiffany raised more than $11,000…

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Race Athlete Spotlight: Tammy Kennedy

Tammy Kennedy has been an avid supporter of the Race to End Duchenne Virtual Series over the past year. Join her in the 79 Mile Challenge starting today! Meet Tammy Why did you choose to…

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PPMD’s Knight Hacks is LIVE! Explore Everyday Tips & Tricks for Families

Have you been in search of an easier way to brush your teeth? A new way to organize your snack shelf that makes food easier to access? Great, accessible travel tips? Introducing Knight Hacks: Everyday…

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Sign up today! Virtual Race Series-79 Mile Challenge

Sign up today for the Race to End Duchenne Virtual Race Series-May 1, 2023 – June 12, 2023! The Virtual Series is back! Join us as we race across the country by completing actions in…

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