November 23, 2023

This Year, I Am Grateful for the Monumental Impact We’ve Made Together

Thanksgiving offers each of us a moment to reflect on all that we are grateful for. This year, I am filled with gratitude for the impact we have made on the Duchenne landscape these past…

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November 16, 2023

Fight for Every Future by Supporting PPMD’s Gene Therapy Initiative

In 1984, the word “Duchenne” entered my world, a life-changing moment when doctors could only offer the advice to go home and love my sons because they believed nothing more could be done. Since that…

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November 16, 2023

PPMD Urges UN Support for ‘World Duchenne Awareness Day’ Resolution Ahead of UN General Assembly Meeting

PPMD CEO and President Pat Furlong and Buddy Cassidy spoke yesterday in front of 60+ diplomats to encourage ambassadors to the United Nations and members of the World Health Organization to support a draft resolution…

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November 4, 2023

Calling All Adults with Duchenne & Becker: Join the 2024 PPMD Adult Advisory Committee (PAAC)

Have you been looking for a way to engage with the community more? Do you have a personal experience that you would like to share with the larger community or through federal and state advocacy…

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October 23, 2023

Join Us for the Fall PPMD Lighthouse Workshops!

We’re excited to announce the return of PPMD Lighthouse Workshops this fall! These workshops provide a safe and supportive space for primary caregivers, as well as spouses and partners of individuals with a Becker diagnosis,…

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October 19, 2023

Sam’s Night Has Another Record-Breaking Year, Raising Over $1,400,000 for PPMD

This year’s 18th annual Sam’s Night event, hosted by the Killian Family in Dallas, TX, set yet another fundraising event record for PPMD, bringing in more than $1,400,000! Sam’s Night (formerly Sam’s Family Fun Day)…

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October 6, 2023

Finding and Accepting Help

PPMD recently launched “Connect Community Chats” to provide an opportunity for families and individuals living with Duchenne to come together virtually in a small group to talk about important life topics. The most recent discussion…

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September 11, 2023

Duchenne Action Month: Ways to get involved with PPMD

We know that no one person, company, or organization will end Duchenne. That’s why we are grateful to all of our collaborators – individuals, organizations, and industry partners – who, by joining forces with PPMD,…

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August 29, 2023

Breaking barriers together, this Duchenne Action Month and every day

On September 7, we will once again join forces with Duchenne and Becker organizations, families, partners, and all those like minded individuals around the globe to commemorate World Duchenne Awareness Day. This year we acknowledge…

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August 10, 2023

A Story of Firsts

On a sunny day in June of 1984, the word “Duchenne” first entered my life. “Go home and love them.” Well intentioned advice from doctors who could offer no hope. Could direct us to little…

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