December 7, 2023

Your Gift Today Funds PPMD’s Fight for Every Future

For over three decades, my life’s work has centered around scientific research aimed at making a positive impact on the lives of individuals living with Duchenne. I have witnessed breakthroughs as therapeutic options moved from…

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December 1, 2023

Empowering Carriers of Duchenne: New Carrier Publications Resource

Being a carrier of Duchenne can feel isolating and misunderstood, especially for those who manifest symptoms. Earlier this year, PPMD began holding monthly support meetings for manifesting carriers to talk through their experiences, raise awareness,…

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November 29, 2023

United Nations Officially Designates September 7 as World Duchenne Awareness Day

The United Nations has marked a momentous milestone for the global rare disease community by officially designating September 7th as World Duchenne Awareness Day, set to be observed annually from 2024. The adoption of the…

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November 28, 2023

Every donation made for #GivingTuesday will be DOUBLED

On this #GivingTuesday, let’s unite in the fight for the future of those living with Duchenne. Your donation today holds extraordinary power as we have a unique opportunity to DOUBLE its impact! The Alex Rezkalla…

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November 23, 2023

This Year, I Am Grateful for the Monumental Impact We’ve Made Together

Thanksgiving offers each of us a moment to reflect on all that we are grateful for. This year, I am filled with gratitude for the impact we have made on the Duchenne landscape these past…

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November 16, 2023

Fight for Every Future by Supporting PPMD’s Gene Therapy Initiative

In 1984, the word “Duchenne” entered my world, a life-changing moment when doctors could only offer the advice to go home and love my sons because they believed nothing more could be done. Since that…

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November 16, 2023

PPMD Urges UN Support for ‘World Duchenne Awareness Day’ Resolution Ahead of UN General Assembly Meeting

PPMD CEO and President Pat Furlong and Buddy Cassidy spoke yesterday in front of 60+ diplomats to encourage ambassadors to the United Nations and members of the World Health Organization to support a draft resolution…

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November 4, 2023

Calling All Adults with Duchenne & Becker: Join the 2024 PPMD Adult Advisory Committee (PAAC)

Have you been looking for a way to engage with the community more? Do you have a personal experience that you would like to share with the larger community or through federal and state advocacy…

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October 23, 2023

Join Us for the Fall PPMD Lighthouse Workshops!

We’re excited to announce the return of PPMD Lighthouse Workshops this fall! These workshops provide a safe and supportive space for primary caregivers, as well as spouses and partners of individuals with a Becker diagnosis,…

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October 19, 2023

Sam’s Night Has Another Record-Breaking Year, Raising Over $1,400,000 for PPMD

This year’s 18th annual Sam’s Night event, hosted by the Killian Family in Dallas, TX, set yet another fundraising event record for PPMD, bringing in more than $1,400,000! Sam’s Night (formerly Sam’s Family Fun Day)…

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