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PPMD Hosts Largest Annual Conference — Presentations Available for Download!

Thank you to everyone who joined us in Scottsdale, AZ for the 2018 Annual Conference! While the extensive agenda, research presentations, break-out sessions, and interactions with industry leaders were all an incredible part of this…

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PPMD Partners with PLAE Shoes

PPMD is excited to announce a new partnership with PLAE Shoes, a leader in comfortable, stylish, hand-crafted shoes for adults and kids. PLAE is a brand many families have turned to in our community because…

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Hayes Mechanical Golf Outing Raises Over $130,000 in the Fight to End Duchenne

On June 19, 240 golfers and volunteers came out for the annual Hayes Mechanical Golf Outing in memory of Patrick and Bobby Chilcutt at the Harborside Golf Course in Chicago. The outing is a corporate…

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2018 Annual Conference Resource Round Up

PPMD’s 2018 Annual Conference Resource Fair Providers Each year we welcome specialized resource providers from around the country to interact with us at PPMD’s Annual Conference. We so appreciate the time and investment from all…

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15th Annual Jumping Jack Charity Golf Tournament Another Huge Success to Help End Duchenne

The 15th Annual Jumping Jack for Duchenne MD Golf Tournament, Wine Tasting, Dinner & Silent Auction that took place on June 18thin Westminster, CO was another huge success! The Knight Family has raised over $530,000 over…

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#PPMDConference: Live Stream the Latest Duchenne Research News and Updates

Research. There is a momentum in the Duchenne research pipeline, the likes of which we have never seen before. Join us at PPMD’s Annual Conference, Thursday, June 28 – Saturday, June 30 to find out…

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2018 #PPMDConference Live Stream: Care & Advocacy Updates You Won’t Want to Miss!

With PPMD’s Annual Conference quickly approaching, we wanted to make sure you are aware of the incredible care and advocacy content that will be covered while we are in Arizona this week! Care It’s at…

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PPMD’s Decode Duchenne Program Serves 1,000th Patient

PPMD is pleased to announce the 1,000th patient application to our Decode Duchenne program. Decode Duchenne is a nationwide program to assist individuals with Duchenne muscular dystrophy in accessing genetic testing, interpretation, and counseling. The…

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Join the 2018 #PPMDConference Live Stream!

Next week we will descend on Scottsdale, Arizona for PPMD’s 24thAnnual Conference! With our most expansive agenda to date, including presentations from dozens of researchers, clinicians, and industry partners, we wanted to make this year’s…

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Jumping Jack Events to End Duchenne Turns 15

For 15 years, the Knight family of Westminster, Colorado has been supporting PPMD’s mission by hosting their annual Jumping Jack Events every June for 15 years now! Named after their son, 17-year—old Jack Knight, Jumping Jack Events started as…

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