March 15, 2024

The Duchenne Registry Has a New Gene Therapy Survey!

Open The Duchenne Registry app and you will notice a new survey on Gene Therapy. If you do not see the Gene Therapy survey listed under the Activities section, please update your app. We recently…

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March 14, 2024

Join Us in Orlando for PPMD’s 30th Annual Conference

Celebrate three decades of progress, community, and resilience at PPMD’s 30th Annual Conference, June 27–29, 2024 in Orlando, Florida! Back in 1994, our very first Conference was held in Orlando, and now, 30 years later,…

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January 9, 2024

Join us at PPMD’s 30th year meetings and events

Happy New Year! As PPMD celebrates its 30th anniversary in 2024, we’re thrilled to announce the expansion of our events and meetings dedicated to accelerating research, enhancing care and quality of life, and fostering connections…

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January 6, 2024

Race to End Duchenne Celebrates Runners During Walt Disney World Marathon Weekend

The Race to End Duchenne team is in The Most Magical Place on Earth this weekend to participate in Walt Disney World® Marathon Weekend, presented by State Farm. Make Every Day Count  Michael (Mike) Napoli,…

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January 3, 2024

Thank You for Fighting for Every Future With Us

As we enter the New Year, my heart is filled with profound gratitude as I am once again reminded of the immense generosity of our Duchenne community. For the past three decades, you have supported…

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December 31, 2023

Give by midnight to double your impact in the fight for every future

As we prepare for the ball to drop and the confetti to fall, I am struck by the significance that this will be PPMD’s 30th year, and find myself reflecting on the remarkable milestones achieved…

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December 30, 2023

Give Before Midnight Tomorrow. Fight for Every Future!

The days leading up to the New Year are always a time of reflection for me. Since 1994 when my mother founded PPMD, my life has been intertwined with the organization. As we head into…

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December 27, 2023

Your Gift to Support PPMD’s Gene Therapy Initiative Goes Twice as Far Now Through 12/31

My son Connor’s diagnosis of Duchenne turned my family’s life upside down. In order to prioritize Connor’s comfort and quality of life we moved from Chicago to Florida. We’ve changed jobs, schools, and care teams,…

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December 19, 2023

Support Every Future: Your Gift to PPMD Doubles Until December 31st

Many of you know as well as we do that receiving a diagnosis of Duchenne is both crushing and overwhelming. We received the diagnosis for both of our sons a little over two years ago…

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December 14, 2023

Your Gift MATCHED Through 12/31 When You Support PPMD’s Fight for Every Future

In 1992, I was diagnosed with Duchenne at two years old, significantly earlier than the typical diagnosis age of 6 or 7 at that time, due to a family history. In the 90’s, our understanding…

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