Blog

PPMD’s 2019 Annual Conference Agenda is Now Available!

PPMD is excited to unveil the agenda for our 2019 Annual Conference in Orlando, Florida, June 26 – June 30, 2019! Each year, PPMD works hard to put together a comprehensive agenda featuring updates in…

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End Duchenne Tour Recap: Portland, ME

PPMD had the opportunity to travel to Portland, ME on April 27 for our third End Duchenne Tour stop of 2019. We were joined by 14 local families, 11 of our industry partners, and 3…

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The Early Bird Rate for PPMD’s 2019 Annual Conference Ends Wednesday!

PPMD’S 2019 ANNUAL CONFERENCE JUNE 26 – JUNE 30, 2019 ORLANDO, FL Your last opportunity to join us at the 2019 PPMD Annual Conference at our Early Bird Registration Rate ends Wednesday, April 24! This…

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Race Athlete Spotlight: Enzo Figueres

Enzo Figueres is an avid mountain biker but will be participating in his first road bike tour this May – with his son in a bike trailer! – as part of the Race to End…

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Unionville Run For Our Sons 5K Celebrates 10-Year Anniversary

Saturday, April 6 marked the 10th Annual Unionville Run For Our Sons 5K – a local DIY Race event hosted by the Johnson family benefiting Parent Project Muscular Dystrophy (PPMD) and our fight to end…

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End Duchenne Tour Recap: Omaha, NE

PPMD had the opportunity to travel to Omaha, NE on March 30 for our second End Duchenne Tour stop of 2019. We were joined by over 50 people including 18 families, 9 industry partners, and 10…

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Register Today for PPMD’s 2019 Annual Conference!

PPMD’S 2019 ANNUAL CONFERENCE JUNE 26 – JUNE 30, 2019 ORLANDO, FL 2019 marks PPMD’s 25th Annual Conference. No other Duchenne conference comes close to the experience of the PPMD Annual Conference. Families, physicians, researchers, caregivers,…

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February 19, 2019

End Duchenne Tour Recap: Las Vegas, NV

PPMD was thrilled to head to Las Vegas, NV for our first End Duchenne Tour stop of 2019 on February 2. More than 45 people came together to learn about the latest information and resources for Duchenne…

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February 5, 2019

PPMD to Host Gene Therapy Policy Forum on March 4, 2019

PPMD is excited to announce that this year’s action-packed Advocacy Conference, March 3-5 2019 will include a special Gene Therapy Policy Forum on Monday, March 4 from 9am to 3pm at The Mayflower Hotel in D.C….

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February 1, 2019

Register Today for PPMD’s 2019 Advocacy Conference!

The PPMD Advocacy Conference registration is live! Join us March 3-5 in Washington DC to advocate for Duchenne directly with Members of Congress. Our community’s presence in Washington has been critical in helping to move the…

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