Blog

PPMD’s Annual Conference to Go Virtual this July

PPMD’s Annual Conference to Go Virtual this July PPMD has made the difficult decision to change the format of our Annual Conference this summer, previously set to be an in-person meeting in July in Arizona….

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WATCH: Family Friday – Managing Learning Challenges at Home

Family Friday: Managing Learning Challenges at Home For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to…

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New Video: Meet The Duchenne Registry App!

New Video: Meet The Duchenne Registry App! Have you downloaded The Duchenne Registry app? Is your account updated? Now’s the time to join the world’s largest Duchenne-specific registry and be the first to learn about…

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WATCH: Access to Approved Therapies and Home Care

Webinar Recording: Access to Approved Therapies and Home Care During our interactive webinar on April 29, 2020, we discussed access to approved therapies and home health considerations in the midst of a pandemic. Speakers from…

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WATCH: Family Friday – Healthy & Fun Cooking at Home

Family Friday: Healthy & Fun Cooking at Home For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays…

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New Charitable Income Tax Deduction Further Incentivizes Your Gift to PPMD

COVID-19 may have altered our lives, but not our priorities. PPMD needs your help now to continue to fund the fight to end Duchenne. And thanks to the recently enacted stimulus bill, known as the…

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Assistance Programs Available to Duchenne Families During the COVID-19 Pandemic

There are currently two programs providing direct assistance to Duchenne families during the COVID-19 pandemic to help with costs for day-to-day expenses. Please be sure to check them out and let others in the community…

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WATCH: Family Friday – Coping with Stress and Anxiety During COVID-19

Family Friday: COVID-19, Social Distancing, & Quarantine – Coping with Stress and Anxiety For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD…

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Survey: Impact of the COVID-19 Pandemic on Duchenne

Today, PPMD launched a survey to gain insight directly from the Duchenne and Becker community on the impact of the COVID-19 pandemic related to care, clinical trials, and access to FDA approved therapies. This information…

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PPMD Moves Date of 2020 Annual Conference to July 23-25

PPMD Moves Date of 2020 Annual Conference to July 23-25, 2020 In light of the ongoing uncertainty brought about by the COVID-19 pandemic, PPMD has decided to move the date of our 26th Annual Conference…

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