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WATCH: Family Friday – Navigating Your Neuromuscular Team

Family Friday: Navigating Your Neuromuscular Team For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss…

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WATCH: Family Friday – Advocating for Yourself in Research

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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Resources for Adjusting to a New Diagnosis of Duchenne

No one is prepared to receive the diagnosis of Duchenne. Most often, parents and caregivers have no prior knowledge of the disease, and information online can be very overwhelming. PPMD has developed a wealth of…

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WATCH: Family Friday – Reflecting on Adjusting to a New Diagnosis

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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Register Today for PPMD’s 2020 Annual Conference – Virtual Edition!

Register Today for PPMD’s 2020 Annual Conference – Virtual Edition! Registration is now open for PPMD’s 2020 Virtual Annual Conference! This is an extraordinary time for our global community, as we slowly begin re-emerging from the…

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WATCH: Family Friday – End of the School Year & Looking Ahead

Family Friday: End of the School Year & Looking Ahead For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching…

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Celebrate the Class of 2020!

When this school year started, none of us could have imagined how it would end. The Class of 2020 has faced challenges, setbacks, and heartbreaks like no other class in recent history. But we have…

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WATCH: Family Friday – Sibling Relationships

Family Friday: Sibling Relationships For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss topics that…

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End Duchenne Tour 2020: Virtual Tour Stop in Milwaukee

End Duchenne Tour 2020: Virtual Tour Stop in Milwaukee On Saturday, April 25, we spent the morning with the Duchenne community in and around Milwaukee, WI for another End Duchenne [Remote] Tour stop. Although the…

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WATCH: Making the Most of Your Telehealth Appointments

Webinar Recording: Making the Most of Your Telehealth Appointments During our May 6, 2020 interactive webinar on telehealth appointments, our guest panelists discussed what to expect, what questions to ask, and how to make the…

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