September 14, 2020

Resilience Is Strength: Thank You for Fueling Our Fight to End Duchenne

As we celebrate the resiliency of our community this week as part of Duchenne Action Month, I have been reflecting upon all that we continue to accomplish, even in this time that is anything but…

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September 7, 2020

It’s World Duchenne Awareness Day!

It’s World Duchenne Awareness Day! Today, September 7, is World Duchenne Awareness Day (#WDAD2020)! On this day we raise awareness for Duchenne around the globe. Each year, World Duchenne Awareness Day highlights a special theme that…

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September 3, 2020

10 Tips & Tricks for Navigating School & Home Routines

In response to the COVID-19 pandemic, many families in our community are facing changes in school and home routines. There can often be heightened emotions around these disruptions, leaving adults and kids alike stressed and…

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September 1, 2020

September is Duchenne Action Month!

SEPTEMBER IS DUCHENNE ACTION MONTH! This year’s Duchenne Action Month feels different, like everything, in light of the global pandemic. Under normal circumstances, everyone would be back at school or heading back to school –…

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August 26, 2020

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways As we look towards this next school year, PPMD recognizes that our community is facing new and difficult choices about in-person and virtual learning. To help…

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August 22, 2020

Mitchell’s Run thru Rockford Goes Virtual to Help End Duchenne

Thank you to our totally tubular runners that took Mitchell’s Run thru Rockford back to the ’80s — and virtual this year! Over 350 runners logged their miles and 23 sponsors raised an outrageous $67,000…

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August 13, 2020

2020 #PPMDConference Presentations

2020 PPMD Annual Conference Presentations JULY 22 – JULY 25, 2020 | Virtual Conference PPMD’s first Virtual Annual Conference was incredible with nearly 2500 families, care providers, researchers, scientists, and industry partners joining us for…

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August 7, 2020

WATCH: Family Friday – Do It Your Way & End Duchenne

Family Friday: Do It Your Way & End Duchenne Although COVID-19 has changed how we conduct events and socialize within our communities, it doesn’t change the fact that you can still support PPMD’s mission. Duchenne doesn’t…

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August 6, 2020

Have You Participated in a Clinical Trial That Was Terminated?

In an effort to learn more about the patient and family experience around clinical trials that have stopped or were terminated, PPMD and Duchenne UK have collaborated on a survey to learn more about your…

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August 4, 2020

ICYMI: Lunch & Learn Sessions

ICYMI: Lunch & Learn Sessions As part of this year’s Virtual Annual Conference, PPMD offered two Lunch & Learn Sessions where we were introduced to family assistance programs available to our community and we took…

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