November 21, 2020

NEW – Fall 2020 Survey: Impact of the COVID-19 Pandemic on Duchenne

PPMD has launched our second COVID-19 Pandemic Impact Survey related to your experiences during the pandemic for accessing care, trials, and approved therapies. Thank you to everyone who completed our first survey earlier in the spring….

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November 20, 2020

Attend PPMD’s Community Concert: Harmony Together

Join us on Sunday, November 22 at 7 PM EST for an incredible evening of music on the PPMD Facebook Page! PPMD’s Community Concert: Harmony Together will feature members of the Duchenne community sharing their…

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November 19, 2020

15th Annual Sam’s Night Raises Over $500,000 in the Fight to End Duchenne

Another historic year for Sam’s Night! Last week, the Killian Family and friends joined “together” to celebrate PPMD’s longest running signature DIY event. With $506,294 raised, 2020 marked the 15th Anniversary, the first virtual edition,…

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November 5, 2020

End Duchenne Tour 2020: Virtual Tour Stop in St. Louis, MO

End Duchenne Tour 2020: Virtual Tour Stop in St. Louis, MO On Saturday, October 17, we spent the morning with the Duchenne community in St. Louis, MO and the surrounding region for another End Duchenne…

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November 3, 2020

Thank You for Joining Our First Race to End Duchenne Virtual Series!

A big thank you to everyone who participated, donated, and cheered on our runners in our first Race to End Duchenne Virtual Series!! Nearly 200 people across the country ran, walked, and rolled around their…

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October 30, 2020

Calling All Adults with Duchenne & Becker: Join the 2021 PPMD Adult Advisory Committee!

Been looking for a way to engage with the community a bit more? Have a personal experience that you would like to share with the larger community or federal and state advocacy efforts? Interested in…

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October 7, 2020

End Duchenne Tour 2020: Virtual Tour Stop in Portland

End Duchenne Tour 2020: Virtual Tour Stop in Portland, OR On Saturday, September 12, we spent the morning with the Duchenne community in Portland, Oregon and the surrounding region for another End Duchenne [Remote] Tour…

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October 1, 2020

Coach To Cure MD: Season 12 Is Underway!

It’s the start of the football season and we are excited to kick off this year’s 12th Annual Coach To Cure MD! Although we would normally host our annual event on the last Saturday of September,…

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September 21, 2020

Join the Race to End Duchenne – Virtually!

Even though we’re apart, our community has never felt more together! Run (or walk, or roll) as one, by participating in PPMD’s first ever Race to End Duchenne Virtual Series. Choose from a 5K, 10K, or 15K…

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September 20, 2020

New! PPMD’s Sibs Connect!

PPMD is launching our first-ever official group for siblings! If you have a sibling with Duchenne or Becker and are looking for a group to support you every step of this journey, this is for you. PPMD’s…

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