January 5, 2021

Because of You, We Can Unleash Breakthroughs

Thanks to your generosity, I am proud to announce that we reached our goal of $400,000 to fund PPMD’s Protein Mapping Project, making the formal launch of our Biomarkers Initiative a success! I am thankful…

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December 31, 2020

Give before midnight. Unlock breakthroughs.

I can’t remember ever looking forward to a new year as much as I am looking forward to 2021. Tonight, as we ring in this hopefully brighter and better new year, I will take a…

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December 30, 2020

Tomorrow is the last chance to double your gift

We’re almost there. Tomorrow at midnight we will ring in a new year, one we all hope will bring a slow return to normalcy, to being together again, and to embracing our loved ones. This…

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December 28, 2020

A Few Days Left to Unlock Answers

When you grow up with Duchenne, it’s all you really know. My diagnosis is a part of who I am. While sometimes that means I have to think a little differently about the way I…

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December 22, 2020

Our Chance to Predict Duchenne Progression

As I write this letter, I feel my breath catch thinking about our journey with Duchenne. Everyone’s Duchenne story is different, and ours has certainly been unique. As a toddler, my son Tommy was hospitalized…

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December 18, 2020

The Possibilities of Our Protein Mapping Project

This year has forced us all to take stock of our lives, all that we have and all that we’ve missed, it is why I can’t help being immensely grateful for our Duchenne community. I’m…

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December 11, 2020

Have Your Gift Matched to Unlock Data and Unleash Breakthroughs

This time of year, we are all looking for the perfect gift for our loved ones, but one size doesn’t fit all. This reminds me of Duchenne, where one size doesn’t fit all either. While…

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December 9, 2020

What exactly is a “Duchenne Protein Map”?

One thing we all know about Duchenne is that no matter when you or your child was diagnosed, some days we wake up and find ourselves feeling like there is still so much we need…

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December 7, 2020

Support PPMD to Unleash Breakthroughs

It is hard to believe that we are here — in the throes of the “magic” of the holiday season. 2020 has not felt much like magic. Instead, a roller coaster of unpredictability and worry. But…

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November 25, 2020

I’m thankful for what we have in each other.

This year. This Thanksgiving. How did we get here? This year has tested our will, our resilience, and our courage. I still have a turkey in the oven and dessert in the fridge, but my…

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