Blog

Thank you for helping turn obstacles into possibilities!

Thank you to every person who donated over the past month to support PPMD’s Gene Therapy Initiative. Thanks to your generosity, we can continue answering the difficult questions we face when it comes to the…

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Only a few days left to have your gift to PPMD matched!

When I think about Gene Therapy, I think about the possibilities. I think about those who fight every day so that Gene Therapy may become a safe reality for many. I think about a future…

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Exciting News! Your gift will be Matched Dollar-for-Dollar up to $50,000

There is nothing ordinary about Duchenne. We all know that. Our Duchenne story started in the ER. At two years old, my middle son was involved in a serious accident and went into cardiac arrest….

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PPMD’s End Duchenne Tour turns 5!

In late 2015, we had a discussion at the PPMD office in Hackensack. Was it time to kick our local educational events up a notch? Have we certified enough centers to have a “home base”…

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Join us Tuesday, April 20 for a conversation about PPMD’s Gene Therapy Initiative

Turning obstacles into possibilities is what initially lead me to joining PPMD. I had little personal experience with our Duchenne community before I began working with Dr. Jerry Mendell and a number of other fantastic…

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Support PPMD to turn obstacles into possibilities

When I think about Duchenne research, I am awestruck. It is hard to wrap my head around how far we’ve come since my boys were diagnosed, but I also know we still have quite a…

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Register Today for PPMD’s 2021 Annual Conference — Virtual Edition!

PPMD’s Annual Conference – Virtual Edition Registration is now open for PPMD’s 2021 Virtual Annual Conference! 2021 remains an extraordinary time for our global community. We are getting closer to safer days ahead and we want…

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February 16, 2021

Save the Date for PPMD’s Annual Conference: Virtual Edition – June 23-26, 2021

PPMD’s Annual Conference – Virtual Edition June 23-26, 2021 It’s hard to believe that we are still in this pandemic. We are getting closer to safer days ahead and we want our Duchenne and Becker…

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February 12, 2021

Meet the 2021 PPMD Adult Advisory Committee (PAAC)

PPMD is thrilled to announce the members of the 2021 PPMD Adult Advisory Committee (PAAC)! PAAC members serve at a leadership capacity to represent the teen and adult Duchenne and Becker community. Despite the inability…

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February 10, 2021

“See you on the Road”: PPMD’s End Duchenne Tour 2021 Stops

Stemming from our PPMD’s Connect Roundtables, PPMD’s End Duchenne Tour stops were formally established in 2015 as the Every Single One Tour. Tour stops are typically one-day long events, providing updates on the latest clinical…

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