Blog

Are You Ready for Kickoff? Coach To Cure MD Returns on Saturday, September 25th

Mark your calendars — Coach To Cure MD, presented by Werner Ladder, is back in-person and in a big way for its 14th season on Saturday, September 25th! Join our team and help #TackleDuchenne. Whether…

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New! Teens & Adults: Join the PAAC Chats App

Teens & Adults with Duchenne & Becker: Join the PAAC Chats App PPMD’s Adult Advisory Committee, better known as the PAAC, has launched a new community platform for teens and adults living with Duchenne and…

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Recently Reported Updates from PPMD’s 2021 Virtual Annual Conference

PPMD’s 2021 Virtual Annual Conference: Recently Reported Updates As a new addition to PPMD’s 2021 Virtual Conference, PPMD invited industry partners to share new data with the community live during the Conference in a series…

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PPMD Is Moving to Washington, DC!

PPMD’s Main Office is Moving to Washington, DC! When Parent Project Muscular Dystrophy started in 1994, formed by a small group of parents and grandparents out of Ohio, we knew that one of our first…

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Rewatch PPMD’s 2021 Virtual Annual Conference

Did You Miss PPMD’s 2021 Virtual Annual Conference? PPMD’s 2021 Virtual Annual Conference was incredible with close to 2,000 families, care providers, researchers, scientists, and industry partners joining us for four days of informative updates…

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PPMD Virtual Conference to Feature 5 Late-Breaking News Sessions

PPMD’s 2021 Virtual Annual Conference to Feature Five Late-Breaking News Sessions We are excited to share that five Industry Partners will be announcing newly released data to the Duchenne community for the first time during…

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PPMD’s Virtual Conference Hub is Live!

PPMD’s 2021 Virtual Annual Conference – Our Hub is Live! If you haven’t registered for PPMD’s 2021 Virtual Annual Conference — now’s the time to do so! Our Conference Hub is now open! This is your opportunity…

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Take Part in the Duchenne Steroid Patient Experience Survey

Patient experience data is a critical tool for advancing drug development in Duchenne and for regulatory decision making. Steroids have been part of care standards for over two decades, however, there is a lack of…

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PPMD’s 2021 Virtual Annual Conference Agenda – Now Available!

PPMD’s 2021 Virtual Annual Conference Agenda – Now Available! PPMD is excited to unveil our full agenda for the 2021 Virtual Annual Conference, June 23-26! Although we cannot be together in-person this summer, that’s not stopping…

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Dr. Mena Scavina Joins PPMD as Certified Duchenne Care Center Program Advisor

I am very excited to announce that Dr. Mena Scavina has joined us as our Certified Duchenne Care Center Program Advisor! While we have an amazing team at PPMD which includes a number of healthcare…

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