March 4, 2022

Race Athlete Spotlight: Austin Hogan

This year, Austin Hogan ran the Houston Half Marathon as part of the Race to End Duchenne team. Meet Austin Why did you choose to join the Race to End Duchenne team? Our family friend…

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February 22, 2022

PPMD’s Power of Us Summit Series: Caregiver registration is now open!

The Power of Us Summit Series — Registration for Parents, Grandparents & Caregivers Is Now Open! April 28-30, 2022 | Atlanta, GA The Power of Us is stronger than any of us alone. Over the…

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January 26, 2022

Save the Date for PPMD’s Upcoming Events!

PPMD is excited to announce our 2022 schedule of educational events, including PPMD’s Annual Conference (hybrid in-person & virtual meeting), End Duchenne Tour (both in-person and virtual stops), and Advocacy Conference (virtual). New this year, PPMD will host The Power of…

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January 24, 2022

Thanking PPMD’s Kathi Kinnett for 20+ Years of Service to the Duchenne Community as She Retires

PPMD celebrates Kathi Kinnett, MSN, APRN, a dedicated member of our incredible Care Team for 10 years, as she announces her retirement at the end of this month. Kathi joined PPMD in 2012 after years of…

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January 21, 2022

PPMD’s Adult Advisory Committee (PAAC) in Action! 2021 Highlights & Looking Ahead

2021 was a busy and productive year for the PPMD Adult Advisory Committee (PAAC), PPMD’s advisory group composed of adult members of our Duchenne and Becker community. The PAAC successfully participated in local and federal…

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January 4, 2022

Thank YOU for Joining the Power of Us!

I am grateful for your generosity this year and excited to announce that we have reached our goal of providing supplemental funding to the Wellstone Muscular Dystrophy Cooperative Research Centers. The Power of Us is…

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December 30, 2021

Tomorrow is the last chance to double your gift

I can’t believe it’s almost the beginning of a new year. In about a week, I will lace up my sneakers once again and join my chosen family for another Walt Disney World Marathon Weekend….

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December 26, 2021

Double the Impact of Your Gift Today!

Once Duchenne enters your life, you learn to be resilient even if it is against your wishes. You learn to come together to get through the tough times, even if it is with a community…

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December 15, 2021

Help PPMD raise $400,000 to invest in the future of Duchenne research

I am humbled to be working in Duchenne research, where patients and families have been the relentless driving force behind the progress we’ve made so far. We have seen the Power of Us realized, as…

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December 15, 2021

Second Chance — Win a NEW Nintendo Switch OLED!

THANK YOU, Duchenne Registry participants! As you might have heard, The Duchenne Registry was thrilled to recently give away a Nintendo Switch OLED to a Duchenne Registry participant who completed all of their surveys. The…

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