May 5, 2022

Race Athlete Spotlight: Catalina Rodriguez

Catalina Rodriguez joined the Race to End Duchenne team and ran the runDisney Princess 5K in February of 2022.  With the support of her son and daughter, she finished with pride. Meet Catalina Why did…

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April 29, 2022

PPMD Brings Caregivers Together to Kick off The Power of Us Summit Series

PPMD Brings Caregivers Together to Kick off The Power of Us Summit Series Today PPMD is excited to convene the first meeting in The Power of Us Summit Series, our series of mental wellness retreats…

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April 7, 2022

The Power of Us Summit Series: Sibling & Teen/Adult Registration Now Open

The Power of Us is stronger than any of us alone. Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize…

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April 3, 2022

PPMD’s 2022 Annual Conference: Knight Hacks Poster Contest

Thanks to the generosity of PTC Therapeutics and members of the community, PPMD has established Knight Hacks: Everyday Tips and Tricks for Families, in memory of Angela Knight. One of Angela Knight’s enduring legacies is…

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April 1, 2022

Race Athlete Spotlight: Sarah James

This year, Sarah James ran the United Airlines NYC Half Marathon as part of the Race to End Duchenne team. Meet Sarah Why did you choose to join the Race to End Duchenne team? My…

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March 22, 2022

PPMD’s Power of Us Summit Series: Caregiver agenda is now available!

The Power of Us: Caregiver Summit — Agenda Is Now Available! April 28-30, 2022 | Atlanta, GA PPMD is excited to unveil our full agenda for The Power of Us: Caregiver Summit which will take place April 28-30,…

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March 4, 2022

Race Athlete Spotlight: Austin Hogan

This year, Austin Hogan ran the Houston Half Marathon as part of the Race to End Duchenne team. Meet Austin Why did you choose to join the Race to End Duchenne team? Our family friend…

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February 22, 2022

PPMD’s Power of Us Summit Series: Caregiver registration is now open!

The Power of Us Summit Series — Registration for Parents, Grandparents & Caregivers Is Now Open! April 28-30, 2022 | Atlanta, GA The Power of Us is stronger than any of us alone. Over the…

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January 26, 2022

Save the Date for PPMD’s Upcoming Events!

PPMD is excited to announce our 2022 schedule of educational events, including PPMD’s Annual Conference (hybrid in-person & virtual meeting), End Duchenne Tour (both in-person and virtual stops), and Advocacy Conference (virtual). New this year, PPMD will host The Power of…

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January 24, 2022

Thanking PPMD’s Kathi Kinnett for 20+ Years of Service to the Duchenne Community as She Retires

PPMD celebrates Kathi Kinnett, MSN, APRN, a dedicated member of our incredible Care Team for 10 years, as she announces her retirement at the end of this month. Kathi joined PPMD in 2012 after years of…

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