Blog

Thank you for joining the Power of Us!

Thank you to everyone who joined the Race to End Duchenne Virtual Series – Power of Us, demonstrating the power of our community when we come together! Nearly 100 people joined the Power of Us…

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Race Athlete Spotlight: Sarah Finazzo

Joining the Race to end Duchenne team in 2022, Sarah has been off to a great start running and fundraising in honor of her nephew, Henry. Her first race with us was the NYC Half…

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PPMD Conference to Feature 3 Late-Breaking News Sessions

PPMD Annual Conference to Feature Three Late-Breaking News Sessions We are excited to announce that three industry partners will be presenting updates to the Duchenne community in late–breaking news sessions during PPMD’s 2022 Annual Conference,…

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PPMD’s 2022 Annual Conference: Full Agenda Available Now!

PPMD’s 2022 Annual Conference: Full Agenda Available Now! We are excited to unveil the full agenda for PPMD’s 2022 Annual Conference, June 23-26 in Scottsdale, AZ! Whether you choose to join us in-person or virtually this…

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Race Athlete Spotlight: Theresa Velykis

Running for her son, Jacob, Theresa Velykis immediately joined the Race to End Duchenne. She joined the team at the United Airlines Rock n’ Roll DC Half Marathon in 2022! Meet Theresa Why did you…

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3 Amazing Keynotes Announced For PPMD’s 2022 Conference — Including YouTube Stars Shane & Hannah Burcaw!

Keynote Lineup Announced For PPMD’s 2022 Annual Conference! We are thrilled to announce our Keynote speaker lineup for PPMD’s 2022 Annual Conference, being held June 23-26 in Scottsdale, AZ (and virtually!). Alongside our already robust Conference…

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BIG NEWS! $500 Travel Reimbursement for PPMD’s Annual Conference Available Through Memorial Day!

Thanks to generous donations and sponsorships, PPMD is thrilled to announce that we are able to provide a $500 travel reimbursement opportunity to all Duchenne/Becker families attending PPMD’s 2022 Annual Conference, June 23-26 in Scottsdale,…

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2022 End Duchenne Tour Recap: Atlanta, GA

2022 End Duchenne Tour Recap: Atlanta, GA The PPMD team was excited to travel to Atlanta for our first in-person End Duchenne Tour stop since 2020. More than 30 people came together to hear about…

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Win a NEW Xbox Series X with PPMD’s Duchenne Registry!

Win a NEW Xbox Series X! For all of you gamers and parents of gamers, PPMD’s Duchenne Registry is excited to announce we will be giving away a brand new Xbox Series X to one…

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Sign up today! Virtual Race Series-Power of Us

Sign up today for the Race to End Duchenne Virtual Race Series-May 21, 2022 – June 19, 2022! The Power of Us is stronger than any one of us alone. Join us for the Race…

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