April 2, 2025

Recap: PPMD Together: Minneapolis, MN

This past weekend, PPMD was joined by families, individuals with Duchenne and Becker, clinicians, researchers, industry partners and local vendors for 2 days of community building, knowledge sharing, and meaningful connections at our PPMD Together…

Learn More

January 16, 2025

Advance the Research Evolution with The Duchenne Registry

Everyone can help advance the research evolution for Duchenne and Becker. Bringing data sources together from multiple research endeavors is a key component of PPMD’s plan to advance the research evolution, and The Duchenne Registry…

Learn More

January 6, 2025

Thank You for Joining us to Advance the Research Evolution

As we enter PPMD’s fourth decade and a new era in Duchenne research, I am once again in awe of this community’s unwavering determination to push boundaries and drive progress. Your generosity continues to propel…

Learn More

December 31, 2024

Double your impact in advancing the research evolution by the end of 2024

As the clock winds down on 2024 and we prepare to ring in the new year, I am awestruck by this community’s accomplishments and full of hope for the future. We have important work yet…

Learn More

December 31, 2024

Give before midnight TONIGHT to double your impact in developing PPMD’s DCRN

Happy New Year’s Eve! We’re almost there. At midnight we will ring in a new year, one that I hope will bring with it incredible experiences, happy memories, and lots of love. I am passionate…

Learn More

December 30, 2024

Together, let’s advance the research evolution

For my fellow adults living with Duchenne and Becker, today’s reality is vastly different from the one we were diagnosed into. We are living longer lives and feeling stronger while doing so. Many of us…

Learn More

December 23, 2024

Life is about time and timing when living with Duchenne

As a family living with Duchenne, time is everything to us. Decades of trials and research have paved the way for a new era, ushering in a reality with a growing landscape of both approved…

Learn More

December 19, 2024

Support PPMD’s commitment to moving the science further, faster

Greetings from Indiana! I write today letting you know that thanks to a generous pledge from a local family I know well, a $100,000 matching gift will be made to PPMD. That means every dollar…

Learn More

December 17, 2024

Your gift to PPMD is a commitment to accelerating progress

As a pediatric neurologist who takes care of children with neuromuscular diseases, I’ve had the privilege of witnessing first-hand the benefit many of our therapies can have for individuals living with Duchenne. Your belief in…

Learn More

December 11, 2024

Advance the Research Evolution: Introducing PPMD’s Dystrophinopathy Clinical Research Network

In 1984, the word “Duchenne” entered my world. The progress we have made since then is astounding. For decades, we have united in our unwavering commitment to end Duchenne, and with recent achievements in this…

Learn More