April 27, 2020

WATCH: Italfarmaco Provides Givinostat Update

Webinar Recording: Italfarmaco Provides Givinostat Update On April 22, 2020, Italfarmaco joined PPMD for a webinar to update the community about Italfarmaco’s development of Givinostat and the recent results of the futility analysis of the…

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April 13, 2020

Sarepta Therapeutics Shares COVID-19 Resources

Sarepta Therapeutics has shared a new COVID-19 resource page on its website, along with a new video providing contact phone numbers for those whom may have questions about continuity of access to Sarepta sponsored clinical…

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April 7, 2020

Astellas Shares Update on COVID-19 and Clinical Trials

Astellas Pharma has shared an update on clinical trial status and COVID-19. Read the Announcement from Astellas Astellas Corporate Position on COVID-19 and Clinical Trials In an effort to help ensure patient safety and alleviate…

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April 6, 2020

Audentes Therapeutics Shares Community Update on Duchenne Program & COVID-19

Audentes Therapeutics has shared an update with the community regarding their Duchenne program and COVID-19. Read the Update from Audentes Dear Duchenne Patient Leaders, On behalf of the team at Audentes, we hope that you…

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April 1, 2020

Santhera Shares Community Update on SIDEROS Trial & COVID-19

Santhera Pharmaceuticals has shared an update with the community regarding the SIDEROS clinical trial and their activities during the COVID-19 epidemic. Read the update from Santhera Dear Duchenne community, Much has changed in the world…

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March 30, 2020

Solid Biosciences Shares Letter to the Duchenne Community: COVID-19 Update

Solid Biosciences Inc. has shared an update with the community regarding the IGNITE DMD clinical hold and COVID-19. Solid’s Letter to the Duchenne Community: Letter to the Duchenne Community: COVID-19 Update Dear Duchenne Community, During…

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March 27, 2020

Pfizer Shares Update on PF-06939926 Gene Therapy Trial and COVID-19

Pfizer has shared an update regarding the PF-06939926 gene therapy trial and COVID-19. Read Pfizer’s update: Our Clinical Trials UPDATE: March 25 —To avoid adding to the demands on the healthcare system during this unprecedented…

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March 27, 2020

Italfarmaco Shares Community Update on Givinostat Trials & COVID-19

Italfarmaco has shared an update with the community regarding givinostat clinical trials and COVID-19. Read the update from Italfarmaco Dear Duchenne Community, ITALFARMACO team would like to take this opportunity to inform you that we…

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March 27, 2020

PTC Shares Additional Update on the Availability of EMFLAZA During COVID-19

PTC has provided additional details about Emflaza during the COVID-19 pandemic. Read PTC Therapeutic’s Statement  PTC Therapeutics, Inc. Update on the Availability of EMFLAZA March 27, 2020 We want to assure patients and health care…

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March 26, 2020

Catabasis Shares March 2020 Newsletter

Catabasis Pharmaceuticals has shared the latest edition of their community newsletter, including information about edasalonexent and COVID-19, and responses to questions they have received. Click here to download the PDF.

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