October 16, 2018

Behavior Challenges and Duchenne: Part 2 – Establishing Consequences

Psychosocial health (also called “mental health”) includes behavior, emotional adjustment, learning/school success, and relationships. These things are very important for overall well-being and quality of life. Addressing the psychosocial needs of a person with Duchenne is…

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October 11, 2018

Pediatrics Supplement Focuses on Specialty Care for People with Duchenne

The supplement “Specialty Care for the Patient with Duchenne Muscular Dystrophy” was recently published in the October 2018 issue of Pediatrics. The supplement aims to raise the standard of care and improve quality of life…

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October 9, 2018

2018 World Muscle Society Update

Last week, PPMD’s Founding President and CEO, Pat Furlong and our SVP of Research Strategy, Abby Bronson attended the annual World Muscle Society (WMS) meeting, this year in Mendoza, Argentina. Pat and Abby have provided…

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October 3, 2018

WATCH: Puberty and Duchenne – Webinar Recording with Dr. Robert Benjamin, Pediatric Endocrinologist

Adolescence is a time of change – changing bodies, changing emotions, changing friends, changing lives. All of these changes are part of puberty, caused by increased levels of testosterone (the male sex hormone). But for…

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October 1, 2018

New Duchenne/Becker ICD Code in Effect Today — G71.01

Today at 12:01 AM  – while most of us were sound asleep – the International Classification of Diseases (ICD) code for Duchenne/Becker muscular dystrophy changed.  Previously, Duchenne muscular dystrophy was classified among a broad category…

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September 26, 2018

PPMD Continues Commitment to Duchenne Newborn Screening through Launch of Pilot in New York State

– PPMD Continues Commitment to U.S. Duchenne Newborn Screening Program – For the last 4 years, PPMD has been leading a national effort to build a Newborn Screening (NBS) infrastructure for Duchenne in the U.S. aimed…

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September 17, 2018

Behavior Challenges and Duchenne: Part 1 – Encouraging Positive Behavior

Psychosocial health (also called “mental health”) includes behavior, emotional adjustment, learning/school success, and relationships. These things are very important for overall well-being and quality of life. Addressing the psychosocial needs of a person with Duchenne…

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September 17, 2018

PPMD’s Ryan Fischer Joins the Muscular Dystrophy Coordinating Committee (MDCC)

When our community first came together with our Congressional champions in 1999 to carve a path forward for our Duchenne community, among the priorities we had was for all federal agencies that impacted our community…

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September 14, 2018

2018/2019 Flu Vaccination Recommendations

The flu virus is constantly changing, with new “models” of flu appearing each year. The Center for Disease Control and Prevention (CDC) looks at the strains of influenza that have affected Australia during their flu…

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September 11, 2018

Natural disaster resources for families living with Duchenne

We are officially in the midst of hurricane season, with a major storm aimed at a large portion of the east coast later this week. To all of our PPMD Family in the path of…

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