December 12, 2018

WATCH: The Heart of PPMD’s Research – Webinar Recording

ICYMI: Yesterday, I had the privilege of hosting an in depth look at PPMD’s cardiac research priorities in Duchenne for 2019. If you were unable to join us live, I hope you will take a…

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November 28, 2018

PPMD Designates University of Virginia Children’s Hospital a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named University of Virginia Children’s Hospital to be the 22nd clinic to be named a Certified Duchenne Care Center PPMD’s Certified Duchenne Care Center Program, which supports standardized, comprehensive care and services…

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November 18, 2018

WATCH: Engaging Families in Care Guideline Development – Webinar Recording

On Wednesday, November 14, PPMD hosted a webinar on patient-centeredness of recently published endocrine care guidelines for Duchenne. Researchers from RAND Health Care and PPMD shared the results of their project that developed a new online…

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November 6, 2018

PPMD Designates Children’s Hospital of Wisconsin a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named the Neuromuscular Disorders Program at Children’s Hospital of Wisconsin to be the 21st clinic to be named a Certified Duchenne Care Center PPMD’s Certified Duchenne Care Center Program,…

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November 1, 2018

PPMD Designates Children’s National Health System a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Children’s National Health System our 20th Certified Duchenne Care Center. PPMD’s Certified Duchenne Care Center Program, which supports standardized, comprehensive care and services for all people living with Duchenne, began…

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October 31, 2018

WATCH: An Update on Corticosteroids – Webinar Recording

PPMD and Dr. John Brandsema hosted a webinar on October 24, 2018 to discuss the current guidelines for steroid use in Duchenne muscular dystrophy, emerging data, and best practices. If you missed the live event,…

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October 25, 2018

Behavior Challenges and Duchenne: Part 3 – Resources

Psychosocial health (also called “mental health”) includes behavior, emotional adjustment, learning/school success, and relationships. These things are very important for overall well-being and quality of life. Addressing the psychosocial needs of a person with Duchenne is…

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October 16, 2018

Behavior Challenges and Duchenne: Part 2 – Establishing Consequences

Psychosocial health (also called “mental health”) includes behavior, emotional adjustment, learning/school success, and relationships. These things are very important for overall well-being and quality of life. Addressing the psychosocial needs of a person with Duchenne is…

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October 11, 2018

Pediatrics Supplement Focuses on Specialty Care for People with Duchenne

The supplement “Specialty Care for the Patient with Duchenne Muscular Dystrophy” was recently published in the October 2018 issue of Pediatrics. The supplement aims to raise the standard of care and improve quality of life…

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October 9, 2018

2018 World Muscle Society Update

Last week, PPMD’s Founding President and CEO, Pat Furlong and our SVP of Research Strategy, Abby Bronson attended the annual World Muscle Society (WMS) meeting, this year in Mendoza, Argentina. Pat and Abby have provided…

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