April 2, 2020

WATCH: COVID-19 & Adults with Duchenne

Webinar Recording: COVID-19 & Adults with Duchenne On April 1, 2020 PPMD hosted an interactive webinar focusing on the adult Duchenne population and their unique risks for COVID-19, featuring representation from across our network of…

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April 1, 2020

PPMD Announces First Dual Pediatric & Adult Certified Duchenne Care Center, Kennedy Krieger Institute

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the program’s second Adult Certified Duchenne Care Center and first dually-certified center, the clinic at Kennedy…

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March 30, 2020

Physical Therapy for Your Lungs

The lungs of people living with Duchenne are not directly affected by the lack of dystrophin in Duchenne. However, the muscles responsible for breathing, including the diaphragm and the intercostal muscles (the tiny muscles between…

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March 27, 2020

WATCH: COVID-19 & Medications – What is safe in Duchenne?

Webinar Recording: COVID-19 & Medications — What is Safe in Duchenne? On March 26, PPMD hosted a webinar: COVID-19 & Medications: What is Safe in Duchenne? We were joined by four Duchenne specialists from our…

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March 19, 2020

WATCH: COVID-19 & Duchenne – What you need to know

Webinar Recording: COVID-19 & Duchenne – What you need to know Earlier today, PPMD hosted a webinar with experts from our Certified Duchenne Care Centers (CDCCs) to educate our community on the current state of COVID-19, as…

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March 17, 2020

COVID-19 & Duchenne: FAQs

March 23, 2020 Update: Please click here to view our most recent COVID-19 information & FAQs. COVID-19 & Duchenne: FAQs We recognize that as the COVID-19 (coronavirus) pandemic continues to evolve and new cases are…

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March 16, 2020

We’re here.

Your PPMD family wants you to know that we are here for you and open as usual – albeit virtually. Email us, reach out on social media, or call. Though most of the team is…

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March 12, 2020

Update on Coronavirus Recommendations & PPMD Events

March 23, 2020 Update: The content below is a previous update from March 12, 2020. Please click here to view our most recent COVID-19 information & FAQs. PREVIOUS INFORMATION FROM MARCH 12, 2020: Update on…

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March 4, 2020

WATCH: Connect with the Experts: Cardiac Care & Research – Webinar Recording

Last week, PPMD hosted the first quarterly Connect with the Experts webinar around cardiac care and research. Dr. Linda Cripe (Nationwide Children’s), Dr. Lee Sweeney (University of Florida), and PPMD’s Eric Camino (Director of Research…

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February 13, 2020

Update from the 3rd Annual Duchenne Healthcare Professionals’ Summit

Moving Forward Together was the theme of PPMD’s 2020 Duchenne Healthcare Professionals’ Summit held late last month. It was an appropriate theme considering the audience of healthcare professionals in attendance who have consistently demonstrated their…

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