Blog

Telehealth Visits: Dos and Don’ts

Telehealth Visits: Dos and Don’t During our May 6, 2020 interactive webinar on telehealth appointments, our panelists, including physicians and a nurse from PPMD’s Certified Duchenne Care Centers, discussed their recent experience utilizing telehealth appointments with…

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New Resource: COVID-19 & Duchenne Care Imperatives (Fact Sheet)

PPMD’s Care Team has created an easy-to-use fact sheet that provides high-level takeaways for the care of individuals with Duchenne and Becker muscular dystrophy during the COVID-19 pandemic, based on information from a recently published…

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WATCH: Making the Most of Your Telehealth Appointments

Webinar Recording: Making the Most of Your Telehealth Appointments During our May 6, 2020 interactive webinar on telehealth appointments, our guest panelists discussed what to expect, what questions to ask, and how to make the…

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NEW REPORT: COVID-19 & Duchenne/Becker Muscular Dystrophy

NEW REPORT: COVID-19 & Duchenne/Becker Muscular Dystrophy Since 2014, PPMD has been growing its network of Certified Duchenne Care Centers (CDCCs) with the goal of standardizing and optimizing patient care throughout the US and making…

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WATCH: Access to Approved Therapies and Home Care

Webinar Recording: Access to Approved Therapies and Home Care During our interactive webinar on April 29, 2020, we discussed access to approved therapies and home health considerations in the midst of a pandemic. Speakers from…

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Assistance Programs Available to Duchenne Families During the COVID-19 Pandemic

There are currently two programs providing direct assistance to Duchenne families during the COVID-19 pandemic to help with costs for day-to-day expenses. Please be sure to check them out and let others in the community…

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Survey: Impact of the COVID-19 Pandemic on Duchenne

Today, PPMD launched a survey to gain insight directly from the Duchenne and Becker community on the impact of the COVID-19 pandemic related to care, clinical trials, and access to FDA approved therapies. This information…

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Thank you for always being our strength

Thank you for always being our strength Re·sil·ience: (noun) the capacity to recover quickly from difficulties; strength. Our Duchenne community is the definition of resilience. And we have never had that resilience challenged like we…

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WATCH: COVID-19, Social Distancing & Quarantine – Coping with Stress & Anxiety

Webinar Recording: COVID-19, Social Distancing & Quarantine – Coping with Stress & Anxiety The stress brought on by self-isolation and social distancing during a pandemic can be challenging to manage, especially when so many of…

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New Video Resource: What is Duchenne?

New Video Resource: What is Duchenne? PPMD is proud to unveil a short new educational video to help kids better understand what Duchenne is and how it may affect the way they play and interact…

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