September 10, 2020

2020/2021 Flu Season: Stay Safe, Informed, and Healthy

As flu season approaches, we want to help you and your family stay safe, healthy, and informed. New “models” of flu appear each year. The Center for Disease Control and Prevention (CDC) examines the influenza strains that…

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September 3, 2020

10 Tips & Tricks for Navigating School & Home Routines

In response to the COVID-19 pandemic, many families in our community are facing changes in school and home routines. There can often be heightened emotions around these disruptions, leaving adults and kids alike stressed and…

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August 26, 2020

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways As we look towards this next school year, PPMD recognizes that our community is facing new and difficult choices about in-person and virtual learning. To help…

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August 24, 2020

Learnings from PPMD’s COVID-19 Pandemic Survey

In spring 2020, Parent Project Muscular Dystrophy (PPMD) released a survey to better understand the patient experience with care, trials, and access to approved therapies during the COVID-19 pandemic. Thank you to everyone who contributed…

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August 20, 2020

PPMD’s Duchenne Newborn Screening Pilot in the Spotlight

PPMD’s Newborn Screening Pilot was recently highlighted at the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) meeting. The ACHDNC advises the US Department of Health and Human Services Secretary about which conditions…

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August 13, 2020

2020 #PPMDConference Presentations

2020 PPMD Annual Conference Presentations JULY 22 – JULY 25, 2020 | Virtual Conference PPMD’s first Virtual Annual Conference was incredible with nearly 2500 families, care providers, researchers, scientists, and industry partners joining us for…

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August 6, 2020

NEW! Download PPMD’s Updated Education Matters Guides for Back-To-School

As the beginning of the school year quickly approaches, PPMD is working to support your family and help you plan for a successful classroom experience, whether it be in-person or virtual. We are thrilled to…

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July 30, 2020

Join PPMD’s Back-To-School Webinar Series

Join PPMD’s Back-To-School Webinar Series Join us for PPMD’s back-to-school webinar series tackling questions and concerns the community has about both in-person and virtual learning environments. PPMD’s Care Team will be joined by leading experts…

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July 29, 2020

PPMD Announces Pediatric Certified Duchenne Care Center, Akron Children’s Hospital

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Akron Children’s Hospital (Akron Children’s) in Akron, Ohio. Rachel Schrader,…

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June 17, 2020

Download PPMD’s New Care Checklists

PPMD knows that keeping track of all elements of your/your child’s care can be overwhelming and confusing. For this reason, we have created a series of care checklists for families to track and understand recommended…

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