Blog

August 24, 2020

Learnings from PPMD’s COVID-19 Pandemic Survey

In spring 2020, Parent Project Muscular Dystrophy (PPMD) released a survey to better understand the patient experience with care, trials, and access to approved therapies during the COVID-19 pandemic. Thank you to everyone who contributed…

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August 20, 2020

PPMD’s Duchenne Newborn Screening Pilot in the Spotlight

PPMD’s Newborn Screening Pilot was recently highlighted at the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) meeting. The ACHDNC advises the US Department of Health and Human Services Secretary about which conditions…

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August 13, 2020

2020 #PPMDConference Presentations

2020 PPMD Annual Conference Presentations JULY 22 – JULY 25, 2020 | Virtual Conference PPMD’s first Virtual Annual Conference was incredible with nearly 2500 families, care providers, researchers, scientists, and industry partners joining us for…

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NEW! Download PPMD’s Updated Education Matters Guides for Back-To-School

As the beginning of the school year quickly approaches, PPMD is working to support your family and help you plan for a successful classroom experience, whether it be in-person or virtual. We are thrilled to…

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Join PPMD’s Back-To-School Webinar Series

Join PPMD’s Back-To-School Webinar Series Join us for PPMD’s back-to-school webinar series tackling questions and concerns the community has about both in-person and virtual learning environments. PPMD’s Care Team will be joined by leading experts…

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PPMD Announces Pediatric Certified Duchenne Care Center, Akron Children’s Hospital

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Akron Children’s Hospital (Akron Children’s) in Akron, Ohio. Rachel Schrader,…

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Download PPMD’s New Care Checklists

PPMD knows that keeping track of all elements of your/your child’s care can be overwhelming and confusing. For this reason, we have created a series of care checklists for families to track and understand recommended…

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PPMD Certifies Children’s Health and UT Southwestern Medical Center

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Children’s Health in Dallas and UT Southwestern Medical Center (Children’s…

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New Physical Therapy Stretching Video Series from PPMD

PPMD Releases New Physical Therapy Stretching Video Series Last week PPMD shared a blog about the newly published article in Muscle & Nerve summarizing the Contractures in Duchenne and Other Neuromuscular Conditions conference hosted by…

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Muscle & Nerve Publishes PPMD-Led Study on Contractures in Duchenne

PPMD is pleased to announce that Muscle & Nerve has published an article summarizing the “Contractures in Duchenne and Other Neuromuscular Conditions” conference hosted by PPMD with the National Institute of Neurological Disorders and Stroke…

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